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针对患有风湿性疾病的年轻人的自我管理项目的在线版和面对面版的可行性:年轻人和同伴领导者的经验

Feasibility of an online and a face-to-face version of a self-management program for young adults with a rheumatic disease: experiences of young adults and peer leaders.

作者信息

Ammerlaan Judy, van Os-Medendorp Harmieke, Scholtus Lieske, de Vos André, Zwier Matthijs, Bijlsma Hans, Kruize Aike A

机构信息

Department of Rheumatology & Clinical Immunology, University Medical Center Utrecht, Utrecht, Netherlands.

出版信息

Pediatr Rheumatol Online J. 2014 Mar 25;12:10. doi: 10.1186/1546-0096-12-10.

Abstract

BACKGROUND

Based on the self-efficacy theory, an online and a face-to-face self-management programs 'Challenge your Arthritis' for young adults with a rheumatic disease have recently been developed. These two courses are led by young peer leaders. The objective of this study was to test the feasibility of the online and face-to-face self-management program.

METHODS

Feasibility was evaluated on items of perceived usefulness, perceived ease of use, user-acceptance, and adherence to both programs in young adults and peer leaders. Additional analyses of interactions on the e-Health applications, discussion board and chat board, were conducted.

RESULTS

Twenty-two young adults with a diagnosed rheumatic disease participated in the study: 12 young adults followed the online program and 10 followed the face-to-face program. Both programs appeared to be feasible, especially in dealing with problems in daily life, and the participants indicated the time investment as 'worthwhile'. In using the online program, no technical problems occurred. Participants found the program easy to use, user friendly, and liked the 'look and feel' of the program.

CONCLUSIONS

Both the online and the face-to-face versions of a self-management program. 'Challenge your arthritis' were found to be feasible and well appreciated by young adults with a rheumatic disease. Because these programs are likely to be a practical aid to health practices, a randomized controlled study to investigate the effects on patient outcomes is planned.

摘要

背景

基于自我效能理论,最近为患有风湿性疾病的年轻人开发了一个在线和一个面对面的自我管理项目“挑战你的关节炎”。这两个课程由年轻的同伴领导者带领。本研究的目的是测试在线和面对面自我管理项目的可行性。

方法

从感知有用性、感知易用性、用户接受度以及年轻人和同伴领导者对两个项目的依从性等方面评估可行性。还对电子健康应用程序、讨论板和聊天板上的互动进行了额外分析。

结果

22名被诊断患有风湿性疾病的年轻人参与了研究:12名年轻人参加了在线项目,10名参加了面对面项目。两个项目似乎都是可行的,尤其是在处理日常生活中的问题方面,参与者表示投入的时间“值得”。在使用在线项目时,未出现技术问题。参与者发现该项目易于使用、对用户友好,并且喜欢该项目的“外观和感觉”。

结论

自我管理项目“挑战你的关节炎”的在线和面对面版本均被发现是可行的,并且受到患有风湿性疾病的年轻人的高度评价。由于这些项目可能对健康实践有实际帮助,计划进行一项随机对照研究以调查其对患者结局的影响。

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