Norris Meriel, Jones Fiona, Kilbride Cherry, Victor Christina
Centre for Research in Rehabilitation, School of Health Sciences and Social Care, Brunel University , London , UK .
Disabil Rehabil. 2014;36(26):2252-61. doi: 10.3109/09638288.2014.904936. Epub 2014 Mar 27.
The utility of self-management with people from minority ethnic backgrounds has been questioned, resulting in the development of culturally specific tools. Yet, the use of stroke specific self-management programmes is underexplored in these high risk groups. This article presents the experience of stroke therapists in using a stroke specific self-management programme with stroke survivors from minority ethnic backgrounds.
26 stroke therapists with experience of using the self-management programme with stroke survivors from minority ethnic backgrounds participated in semi-structured interviews. These were audio recorded, transcribed verbatim and analysed thematically.
Three themes were identified. One questioned perceived differences in stroke survivors interaction with self-management based on ethnicity. The other themes contrasted with this view demonstrating two areas in which ethnic and cultural attributes were deemed to influence the self-management process both positively and negatively. Aspects of knowledge of health, illness and recovery, religion, family and the professionals themselves are highlighted.
This study indicates that ethnicity should not be considered a limitation to the use of an individualized stroke specific self-management programme. However, it highlights potential facilitators and barriers, many of which relate to the capacity of the professional to effectively navigate cultural and ethnic differences.
少数民族背景人群自我管理的效用受到质疑，因此开发了具有文化特异性的工具。然而，针对这些高危人群的中风特异性自我管理项目的应用却鲜有探索。本文介绍了中风治疗师在为少数民族背景的中风幸存者使用中风特异性自我管理项目方面的经验。
26名有过为少数民族背景的中风幸存者使用自我管理项目经验的中风治疗师参与了半结构化访谈。访谈进行了录音，逐字转录并进行了主题分析。
确定了三个主题。一个主题对基于种族的中风幸存者在自我管理互动方面的感知差异提出了质疑。其他主题则与这一观点形成对比，展示了种族和文化属性被认为对自我管理过程产生积极和消极影响的两个领域。突出了健康、疾病和康复知识、宗教、家庭以及专业人员自身等方面。
本研究表明，种族不应被视为使用个性化中风特异性自我管理项目的限制。然而，它突出了潜在的促进因素和障碍，其中许多与专业人员有效应对文化和种族差异的能力有关。
