Donzelli Gianpaolo, Paddeu Erika Maria, D'Alessandro Francesca, Nanni Costa Alessandro
Department of Neuroscience, Psychology, Drug Research and Child Health, University of Florence , Florence , Italy and.
J Matern Fetal Neonatal Med. 2015 Jan;28(2):158-61. doi: 10.3109/14767058.2014.906578. Epub 2014 Apr 9.
Narrative medicine allows professionals from all fields of medical sciences to understand the patient's total experience of illness, and meet his/her needs in an empathetic environment. Narrative medicine helps spread holistic knowledge of a multitude of complex clinical conditions, including transplantation.
To underline the role of narrative medicine in women who become pregnant after a liver transplant by using their narrations of this very special experience.
We describe our study with narration and listening to the stories of three women expecting their first child after a liver transplant, by analysing the structure and role of narration in the context of relationships between patients and caregivers. The narrations were transcribed verbatim with the main plot analysed in order to address all the aspects of this rare clinical condition and the transition to parenthood.
The women narrated this experience in three phases: transplantation, pregnancy and delivery, and post-partum. They described all phases of pregnancy as stressful but satisfying, whereas the fact of becoming a mother was perceived as a victory both as a woman and as a transplant patient.
Our results suggest that narrative medicine represents a significant professional tool for caring for transplant patients during pregnancy.
叙事医学使医学各领域的专业人员能够理解患者患病的全部经历，并在充满同理心的环境中满足其需求。叙事医学有助于传播包括移植在内的多种复杂临床病症的整体知识。
通过讲述肝脏移植后怀孕女性这一非常特殊经历，强调叙事医学在她们当中所起的作用。
我们通过分析患者与护理人员关系背景下叙事的结构和作用，用叙事及聆听三位肝脏移植后首次怀孕女性的故事来描述我们的研究。叙事内容逐字转录，并分析主要情节，以探讨这种罕见临床病症及为人母转变的各个方面。
这些女性分三个阶段讲述了这段经历：移植、怀孕与分娩以及产后。她们将怀孕的各个阶段描述为压力重重但又令人满足，而成为母亲这一事实被视为作为女性和移植患者的双重胜利。
我们的结果表明，叙事医学是孕期护理移植患者的一项重要专业工具。
