Martínez-Pérez Borja, de la Torre-Díez Isabel, Bargiela-Flórez Beatriz, López-Coronado Miguel, Rodrigues Joel J P C
University of Valladolid, Spain.
University of Valladolid, Spain
Health Informatics J. 2015 Dec;21(4):267-83. doi: 10.1177/1460458214525615. Epub 2014 Apr 3.
This article aims to characterize the different types of Facebook and Twitter groups for different mental diseases, their purposes, and their functions. We focused the search on depressive disorders, dementia, and Alzheimer's and Parkinson's diseases and examined the Facebook (www.facebook.com) and Twitter (www.twitter.com) groups. We used four assessment criteria: (1) purpose, (2) type of creator, (3) telehealth content, and (4) free-text responses in surveys and interviews. We observed a total of 357 Parkinson groups, 325 dementia groups, 853 Alzheimer groups, and 1127 depression groups on Facebook and Twitter. Moreover, we analyze the responses provided by different users. The survey and interview responses showed that many people were interested in using social networks to support and help in the fight against these diseases. The results indicate that social networks are acceptable by users in terms of simplicity and utility. People use them for finding support, information, self-help, advocacy and awareness, and for collecting funds.
本文旨在描述针对不同精神疾病的脸书和推特群组的不同类型、其目的及功能。我们将搜索重点放在抑郁症、痴呆症以及阿尔茨海默病和帕金森病上,并对脸书(www.facebook.com)和推特(www.twitter.com)群组进行了研究。我们采用了四项评估标准:(1)目的,(2)创建者类型,(3)远程医疗内容,以及(4)调查和访谈中的自由文本回复。我们在脸书和推特上共观察到357个帕金森病群组、325个痴呆症群组、853个阿尔茨海默病群组和1127个抑郁症群组。此外,我们分析了不同用户提供的回复。调查和访谈回复表明,许多人有兴趣利用社交网络来支持和帮助抗击这些疾病。结果表明,社交网络在简单性和实用性方面为用户所接受。人们利用它们来寻求支持、获取信息、自助、宣传和提高认识以及筹集资金。