Smith Amy M, Grzywacz Joseph G
Department of Human Development and Family Science, Oklahoma State University.
Fam Syst Health. 2014 Sep;32(3):303-12. doi: 10.1037/fsh0000049. Epub 2014 Apr 21.
The objectives of this study were to delineate variation in mental and physical health outcomes over a 10-year period among parents with a child with special health needs as compared to parents of a typically developing child; and evaluate the possible protective effects of parental perceived control and social support. The sample consisted of 646 parents from the longitudinal Midlife Development in the United States (MIDUS) study. Nearly one-quarter of the sample (n = 128; 22.3%) reported having a child with a special health care need. Cross-sectional analyses indicated that parents of a child with special care needs reported poorer self-rated mental health, greater depressive symptoms, and more restrictions in instrumental activities of daily living (IADL). Parents of a child with special health care needs had greater increases in depressive symptoms over time and greater declines in instrumental activities of daily living than parents of typically developing children. Perceived control was a robust predictor of all health outcomes over time. The added stressors of parenting a child with special health needs may undermine the long-term health of parents. Behavioral interventions and clinical practices that facilitate parental perceived control may enable resilience and better health.
本研究的目的是描绘有特殊健康需求儿童的父母与发育正常儿童的父母在10年期间心理健康和身体健康结果的差异;并评估父母感知控制和社会支持可能产生的保护作用。样本包括来自美国中年发展纵向研究(MIDUS)的646名父母。近四分之一的样本(n = 128;22.3%)报告称有一个有特殊医疗需求的孩子。横断面分析表明,有特殊护理需求儿童的父母报告的自评心理健康较差、抑郁症状更严重,以及在日常生活工具性活动(IADL)方面受到更多限制。与发育正常儿童的父母相比,有特殊医疗需求儿童的父母随着时间的推移抑郁症状增加更多,日常生活工具性活动下降更多。随着时间的推移,感知控制是所有健康结果的有力预测因素。养育有特殊健康需求儿童所增加的压力源可能会损害父母的长期健康。促进父母感知控制的行为干预和临床实践可能会增强复原力并改善健康状况。