Magaña S, Li H, Miranda E, Paradiso de Sayu R
University of Illinois at Chicago, Chicago, IL, USA.
J Intellect Disabil Res. 2015 May;59(5):397-410. doi: 10.1111/jir.12139. Epub 2014 Apr 24.
Latina mothers who care for children with intellectual and developmental disabilities (IDD) over the lifespan struggle to take care of their own health needs in the context of their caregiving experience. Services are typically aimed at the persons with IDD and not their family caregivers. Yet, attending to family caregiver needs may contribute to better long-term care of persons with IDD who remain at home. To address this unmet need, we developed a culturally sensitive health education intervention for Latina mothers who care for youth and adults with IDD. The aim of the intervention is to improve maternal health-related self-efficacy and health behaviours, and to reduce stress.
A randomised control design was employed to determine preliminary efficacy of the intervention. Paired sample t-tests were conducted to examine within-group changes from baseline to 3-month post-test. Repeated-measures analysis of covariance was used to examine the group-by-time interaction effects.
Intervention participants showed greater increases between pre- and post-test in health-related self-efficacy; self-care, nutrition and overall health behaviours. Both groups reported decreases in depressive symptoms and caregiver burden.
While additional research is needed to determine long-term effects and to replicate findings, our results suggest that this culturally sensitive health intervention is a promising way to increase health behaviours which may lead to overall good health for Latina mothers who care for children with IDD across the lifespan.
在整个生命周期中照顾患有智力和发育障碍(IDD)儿童的拉丁裔母亲,在其照顾经历中难以满足自身的健康需求。服务通常针对患有IDD的人,而非其家庭照顾者。然而,关注家庭照顾者的需求可能有助于对留在家中的IDD患者进行更好的长期护理。为满足这一未得到满足的需求,我们为照顾患有IDD的青少年和成年人的拉丁裔母亲开发了一种具有文化敏感性的健康教育干预措施。该干预措施的目的是提高母亲与健康相关的自我效能感和健康行为,并减轻压力。
采用随机对照设计来确定干预措施的初步效果。进行配对样本t检验以检查从基线到测试后3个月的组内变化。使用重复测量协方差分析来检查组间时间交互效应。
干预参与者在测试前和测试后之间,与健康相关的自我效能感、自我护理、营养和总体健康行为方面有更大的提升。两组均报告抑郁症状和照顾者负担有所减轻。
虽然需要进一步的研究来确定长期效果并重复研究结果,但我们的结果表明,这种具有文化敏感性的健康干预是一种有前景的方式,可以增加健康行为,这可能会为在整个生命周期中照顾患有IDD儿童的拉丁裔母亲带来整体健康。