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一个用于共同开发针对残疾儿童拉丁裔移民照料者的文化定制干预措施的概念模型。

A conceptual model for co-developing a culturally tailored intervention for Latina immigrant caregivers of children with disabilities.

作者信息

Suarez-Balcazar Yolanda, Yu Amy Pei-Lung, Brown Stephany, Brown-Hollie Jasmine, Crostley Adriana, Parra-Medina Deborah, Saenz Mariela, Mirza Mansha, Velasquez Aileen, Vanegas Sandra, Magaña Sandy

机构信息

University of Illinois Chicago, Chicago, Illinois, USA.

University of Texas at Austin, Austin, Texas, USA.

出版信息

Am J Community Psychol. 2025 Jun;75(3-4):386-397. doi: 10.1002/ajcp.12789. Epub 2025 Feb 9.

DOI:10.1002/ajcp.12789
PMID:39924993
Abstract

The growing diversity of the U.S. population, partly due to immigration, has called attention to scholars and practitioners to attend to immigrants' cultural beliefs, values, and ways of doing when designing interventions to promote health and wellbeing. In this paper, we propose a contextual and dynamic model for co-developing a culturally tailored intervention with the community to advance equity and empowerment of Latinx immigrant caregivers of children with intellectual and developmental disabilities (IDD). Grounded in the literature and voices of the community, the proposed model includes six interactive dimensions (LARREDS) that guided the development of the PODER Familiar intervention described here. These include language and linguistic preferences; accessibility factors; reflecting the group's values, ways of thinking and doing; reflecting generational differences; dimensions of delivery and learning style; and the social, ecological, and cultural environment. Informed by principles of family engagement, the model also includes eight strategies for engaging caregivers throughout the intervention. The conceptual model was co-developed with promotoras who also provided input on the PODER Familiar intervention. While describing the model in action, we highlight the voices of the promotoras. The implications of culturally tailored interventions and the application of the model to designing interventions for other migrant populations are discussed.

摘要

美国人口日益多样化,部分原因是移民,这促使学者和从业者在设计促进健康和福祉的干预措施时关注移民的文化信仰、价值观和行为方式。在本文中,我们提出了一个情境化和动态化的模型,用于与社区共同开发一种文化定制干预措施,以促进患有智力和发育障碍(IDD)儿童的拉丁裔移民照顾者的公平和赋权。基于文献和社区的声音,所提出的模型包括六个互动维度(LARREDS),这些维度指导了此处所述的PODER Familiar干预措施的开发。这些维度包括语言和语言偏好;可及性因素;反映群体的价值观、思维方式和行为方式;反映代际差异;交付和学习风格维度;以及社会、生态和文化环境。该模型以家庭参与原则为指导,还包括在整个干预过程中让照顾者参与的八项策略。这个概念模型是与社区健康工作者共同开发的,他们也为PODER Familiar干预措施提供了意见。在描述该模型的实际应用时,我们突出了社区健康工作者的声音。我们还讨论了文化定制干预措施的意义以及该模型在为其他移民群体设计干预措施中的应用。

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本文引用的文献

1
The Cultural Adaptation Checklist (CAC): quality indicators for cultural adaptation of intervention and practice.文化适应检查表(CAC):干预措施和实践文化适应的质量指标。
Int J Dev Disabil. 2023 Feb 20;70(7):1285-1296. doi: 10.1080/20473869.2023.2176966. eCollection 2024.
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Goal Setting with Latinx Families of Children with Intellectual and Developmental Disabilities: Case Studies.为有智力和发育障碍儿童的拉丁裔家庭设定目标:案例研究
Behav Soc Issues. 2022;31(1):194-214. doi: 10.1007/s42822-022-00094-2. Epub 2022 Apr 19.
3
Need for Culturally Competent and Responsive Cancer Education for African Immigrant Families and Youth Living in the United States.
生活在美国的非洲移民家庭和青少年对具有文化能力和响应性的癌症教育的需求。
JMIR Cancer. 2024 Mar 6;10:e53956. doi: 10.2196/53956.
4
Sembrando Semillas, sowing seeds: Reflections on Latinx representations in US community psychology's AJCP.播种种子:对美国社区心理学 AJCP 中拉丁裔代表性的思考。
Am J Community Psychol. 2023 Dec;72(3-4):328-340. doi: 10.1002/ajcp.12719. Epub 2023 Nov 20.
5
Cultural Sensitivity and Cultural Tailoring: Lessons Learned and Refinements After Two Decades of Incorporating Culture in Health Communication Research.文化敏感性与文化定制:将文化纳入健康传播研究二十年来的经验教训与改进。
Annu Rev Public Health. 2024 May;45(1):195-212. doi: 10.1146/annurev-publhealth-060722-031158. Epub 2024 Apr 3.
6
Disability rights and empowerment: Reflections on AJCP research and a call to action.残疾权利与赋权:对《美国临床病理学期刊》研究的思考及行动呼吁。
Am J Community Psychol. 2023 Dec;72(3-4):317-327. doi: 10.1002/ajcp.12710. Epub 2023 Oct 19.
7
Community Health Workers as Puentes/Bridges to Increase COVID-19 Health Equity in Latinx Communities of the Southwest U.S.社区卫生工作者作为增进美国西南部拉丁裔社区 COVID-19 健康公平的桥梁
J Community Health. 2023 Jun;48(3):398-413. doi: 10.1007/s10900-022-01182-5. Epub 2022 Dec 19.
8
Systems of Oppression: The Impact of Discrimination on Latinx Immigrant Adolescents' Well-Being and Development.压迫性制度:歧视对拉丁裔移民青少年福祉和发展的影响。
J Res Adolesc. 2022 Jun;32(2):501-517. doi: 10.1111/jora.12751. Epub 2022 Apr 1.
9
Community-engaged asset mapping with Latinx immigrant families of youth with disabilities.与残疾青年的拉丁裔移民家庭进行社区参与式资产映射。
Am J Community Psychol. 2022 Sep;70(1-2):89-101. doi: 10.1002/ajcp.12578. Epub 2021 Dec 28.
10
Culturally tailored interventions for ethnic minorities: A scoping review.文化适应干预措施在少数民族中的应用:系统评价。
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