BC Cancer Agency Centre for the North, Prince George, BC. ; University of British Columbia, Vancouver, BC. ; University of Northern British Columbia, Prince George, BC.
University of British Columbia, Vancouver, BC.
Curr Oncol. 2014 Apr;21(2):e179-85. doi: 10.3747/co.21.1729.
The unmet needs of cancer survivors in rural, remote, and aboriginal communities are largely unexplored. We explored potential differences between rural survivors (rss) in 4 general population (gp) and 4 First Nations (fn) communities.
We approached 4 gp and 4 fn rs communities to participate in a mixed-methods project. Participants completed the Hospital Anxiety and Depression Scale (hads) and the Survivor Unmet Needs Survey (suns) and provided demographic information. Each question on the suns can be scored from 0 to 4, with 0 representing "no unmet need" and 4 representing "very high unmet need." A directed approach to content analysis of focus group and interview data was used to triangulate the hads and suns results.
We prospectively accrued 23 fn rss and 56 gp rss for this study. More fn rss had borderline or abnormal anxiety (5% vs. 21%, p = 0.02). Compared with gp rss, fn rss had higher unmet needs scores in all categories: Information (2.29 vs. 0.8, p < 0.001), Work and Financial (1.66 vs. 0.5, p < 0.001), Access and Continuity of Health Care (1.83 vs. 0.44, p < 0.001), Coping and Sharing (2.22 vs. 0.62, p < 0.001), and Emotional (2.12 vs. 0.63, p < 0.001). The qualitative findings provided examples and insight into the unmet needs experienced by rss.
First Nations rss had significantly higher anxiety and unmet needs compared with their gp rs counterparts. In addition, different qualitative themes were identified in the groups. Our findings support the development of tailored approaches to survivorship for these populations.
农村、偏远和原住民社区癌症幸存者的未满足需求在很大程度上尚未得到探索。我们探讨了 4 个普通人群（gp）社区和 4 个第一民族（fn）社区中的农村幸存者（rss）之间的潜在差异。
我们联系了 4 个 gp 和 4 个 fn rs 社区参与一项混合方法研究。参与者完成了医院焦虑和抑郁量表（hads）和幸存者未满足需求调查（suns），并提供了人口统计学信息。suns 上的每个问题的得分可以从 0 到 4，0 表示“没有未满足的需求”，4 表示“非常高的未满足的需求”。采用有针对性的方法对焦点小组和访谈数据进行内容分析，以对 hads 和 suns 的结果进行三角验证。
我们前瞻性地为这项研究招募了 23 名 fn rss 和 56 名 gp rss。fn rss 中出现边缘性或异常焦虑的比例更高（5%比 21%，p = 0.02）。与 gp rss 相比，fn rss 在所有类别中的未满足需求评分都更高：信息（2.29 比 0.8，p < 0.001）、工作和财务（1.66 比 0.5，p < 0.001）、医疗保健的获取和连续性（1.83 比 0.44，p < 0.001）、应对和分享（2.22 比 0.62，p < 0.001）和情感（2.12 比 0.63，p < 0.001）。定性研究结果提供了 rss 经历的未满足需求的示例和见解。
与 gp rs 相比，第一民族 rss 的焦虑和未满足需求明显更高。此外，在这两个群体中还确定了不同的定性主题。我们的研究结果支持为这些人群制定量身定制的生存策略。
