Blais Marie-Claude, Maunsell Elizabeth, Grenier Sophie, Lauzier Sophie, Dorval Michel, Pelletier Sylvie, Guay Stéphane, Robidoux André, Provencher Louise
Département de psychologie, Université du Québec à Trois-Rivières, Trois-Rivières, Canada.
J Cancer Surviv. 2014 Sep;8(3):508-20. doi: 10.1007/s11764-014-0359-1. Epub 2014 Apr 27.
The study objectives were to identify key information components that would be the basic content of a brief informational intervention, developed from a population perspective, to empower individual couple members facing breast cancer and to validate the relevance and acceptability of these components.
A review of information relevant to couples facing cancer presented in internet sites and documents of national cancer organizations was made to identify information components to include in a brief informational intervention. These information components were framed as messages, that is, very brief sentences or tips. To validate the relevance and acceptability of these messages, six focus groups were conducted in Quebec City and Montreal among women who had had breast cancer and their spouses. Reactions to the messages were synthesized by analyzing the verbatim transcripts.
A total of 70 individuals (35 women with an average of 14 months since diagnosis and 35 spouses) participated in the groups. The content of almost all messages was seen as relevant, although nuances and improvements were discussed. However, the message format provoked irritation and will need improvement.
Findings provide validation of the relevance, from the viewpoint of women and their spouses, of the message content to be part of a brief informational intervention intended to empower couples as they cope with breast cancer.
Couples approved of the idea of being guided in their adjustment to breast cancer. However, the message format requires adaptation and further testing.
本研究的目标是确定关键信息要素，这些要素将构成从人群角度出发制定的简短信息干预的基本内容，以增强面临乳腺癌的夫妻个体成员的能力，并验证这些要素的相关性和可接受性。
对互联网网站和国家癌症组织文件中呈现的与癌症患者夫妻相关的信息进行综述，以确定纳入简短信息干预的信息要素。这些信息要素被构建为信息，即非常简短的句子或提示。为了验证这些信息的相关性和可接受性，在魁北克市和蒙特利尔对患有乳腺癌的女性及其配偶进行了六个焦点小组访谈。通过分析逐字记录稿来综合对这些信息的反应。
共有70人（35名女性，平均诊断后14个月，35名配偶）参与了这些小组。几乎所有信息的内容都被认为是相关的，尽管也讨论了细微差别和改进之处。然而，信息格式引发了不满，需要改进。
研究结果从女性及其配偶的角度验证了信息内容作为简短信息干预一部分的相关性，该干预旨在增强夫妻应对乳腺癌的能力。
夫妻认可在适应乳腺癌过程中得到指导的想法。然而，信息格式需要调整并进一步测试。
