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一种二元方法,用于理解乳腺癌对早期康复期伴侣关系的影响。

A dyadic approach to understanding the impact of breast cancer on relationships between partners during early survivorship.

作者信息

Keesing Sharon, Rosenwax Lorna, McNamara Beverley

机构信息

School of Occupational Therapy and Social Work, Curtin University, GPO Box U1987, Perth, WA, 6845, Australia.

Deputy Pro Vice-Chancellor, Health Sciences, Curtin University, Perth, WA, Australia.

出版信息

BMC Womens Health. 2016 Aug 25;16(1):57. doi: 10.1186/s12905-016-0337-z.

Abstract

BACKGROUND

The shared impact of breast cancer for women and their male partners is emerging as an important consideration during the experience of a breast cancer diagnosis, particularly during survivorship. This study aimed to explore the experiences of women and their partners during early survivorship and contributes a range of insights into the lives of those intimately affected by breast cancer.

METHODS

In-depth interviews were completed with Australian women survivors of breast cancer (n = 8) and their partners (n = 8), between six months and five years following cessation of treatment. Questions included a focus on the women and their partners' daily experiences during early survivorship, including the management of ongoing symptoms, engagement in leisure and social interests, returning to work, communicating with each other, maintenance of the current relationship and other important roles and responsibilities. Thematic analysis was employed to determine key themes arising from the dyadic accounts of women and their partners' experiences during early breast cancer survivorship.

RESULTS

Women and their partners experienced many changes to their previous roles, responsibilities and relationships during early breast cancer survivorship. Couples also reported a range of communication, intimacy and sexuality concerns which greatly impacted their interactions with each other, adding further demands on the relationship. Three significant themes were determined: (1) a disconnection within the relationship - this was expressed as the woman survivor of breast cancer needing to prioritise her own needs, sometimes at the expense of her partner and the relationship; (2) reformulating the relationship - this reflects the strategies used by couples to negotiate changes within the relationship; and (3) support is needed to negotiate the future of the relationship - couples emphasised the need for additional support and resources to assist them in maintaining their relationship during early survivorship.

CONCLUSION

It can be concluded that the early survivorship period represents a crucial time for both women and their partners and there are currently limited options available to meet their shared needs and preferences for support. Findings indicate that a suitable model of care underpinned by a biopsychosocial framework, access to comprehensive assessment, timely support and the provision of targeted resources are urgently needed to assist women and their partners during this critical time.

摘要

背景

乳腺癌对女性及其男性伴侣的共同影响正成为乳腺癌诊断过程中,尤其是在康复期需要重点考虑的因素。本研究旨在探讨女性及其伴侣在早期康复期的经历,并深入了解那些受乳腺癌密切影响者的生活。

方法

对澳大利亚乳腺癌女性幸存者(n = 8)及其伴侣(n = 8)进行了深入访谈,访谈在治疗结束后的6个月至5年期间进行。问题聚焦于女性及其伴侣在早期康复期的日常经历,包括持续症状的管理、参与休闲和社交活动、重返工作岗位、相互沟通、维持当前关系以及其他重要角色和责任。采用主题分析法来确定从女性及其伴侣在早期乳腺癌康复期的二元叙述中产生的关键主题。

结果

在早期乳腺癌康复期,女性及其伴侣在以往的角色、责任和关系方面经历了许多变化。夫妻双方还报告了一系列沟通、亲密关系和性方面的问题,这些问题极大地影响了他们彼此之间的互动,给关系带来了更多需求。确定了三个重要主题:(1)关系中的脱节——这表现为乳腺癌女性幸存者需要优先考虑自己的需求,有时会以牺牲伴侣和关系为代价;(2)重新构建关系——这反映了夫妻双方用来协商关系中变化的策略;(3)协商关系未来需要支持——夫妻双方强调在早期康复期需要额外的支持和资源来帮助他们维持关系。

结论

可以得出结论,早期康复期对女性及其伴侣来说都是关键时期,目前满足他们共同需求和支持偏好的选择有限。研究结果表明,迫切需要一个以生物心理社会框架为基础的合适护理模式、全面评估的途径、及时的支持以及提供有针对性的资源,以在这个关键时期帮助女性及其伴侣。

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