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新的披露模式:夸祖鲁-纳塔尔省的艾滋病毒呈阳性支持小组成员如何在口述故事中讲述他们的状况

New patterns of disclosure: how HIV-positive support group members from KwaZulu-Natal speak of their status in oral narratives.

作者信息

Denis Philippe

出版信息

Med Hist. 2014 Apr;58(2):278-97. doi: 10.1017/mdh.2014.23.

DOI:10.1017/mdh.2014.23
PMID:24775433
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4006135/
Abstract

This paper examines the representations and emotions associated with disclosure and stigma in Pietermaritzburg, KwaZulu-Natal, seven years after the start of the South African government's ARV roll-out programme on the basis of in-depth oral history interviews of HIV-positive support group members. It argues that the wider availability of ARV treatment, the ensuing reduced fatality rate and the increased number of people, including men, who receive counselling and testing, may mean that HIV/AIDS is less stigmatised and that disclosure has become easier. This does not mean that stigma has disappeared and that the confusion created by competing world-views and belief systems has dissipated. Yet the situation of extreme denial and ideological confusion observed, for example, by Deborah Posel and her colleagues in 2003 and 2004 in the Mpumalanga province seems to have lessened. The interviews hint at the possibility that people living with HIV may have, more than a decade before, a language to express the emotions and feelings associated with HIV/AIDS. They were also found to be more assertive in matters of gender relations. These new attitudes would make disclosure easier and stigma more likely to recede.

摘要

本文基于对艾滋病毒呈阳性的支持小组成员的深入口述历史访谈,审视了南非政府在夸祖鲁-纳塔尔省彼得马里茨堡推出抗逆转录病毒药物(ARV)项目七年后,与信息披露及污名化相关的表现形式和情绪。文章认为,抗逆转录病毒治疗的更广泛可及性、随之而来的死亡率降低,以及包括男性在内接受咨询和检测的人数增加,可能意味着艾滋病毒/艾滋病的污名化程度降低,信息披露变得更容易。但这并不意味着污名已经消失,由相互冲突的世界观和信仰体系所造成的困惑也已消散。然而在2003年和2004年,黛博拉·波塞尔及其同事在姆普马兰加省观察到的那种极端否认和意识形态混乱的情况似乎有所减轻。访谈暗示,艾滋病毒感染者在十多年前可能就有了一种语言来表达与艾滋病毒/艾滋病相关的情绪和感受。研究还发现,他们在性别关系问题上更坚定自信。这些新态度会使信息披露更容易,污名化也更有可能消退。

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本文引用的文献

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HIV/AIDS stigma: The latest dirty secret.艾滋病毒/艾滋病污名:最新的隐秘丑闻。
Afr J AIDS Res. 2003;2(2):95-101. doi: 10.2989/16085906.2003.9626564.
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Secrecy, stigma and HIV/AIDS: An introduction.保密、污名与艾滋病毒/艾滋病:引言
Afr J AIDS Res. 2003;2(2):85-8. doi: 10.2989/16085906.2003.9626562.
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Support Groups, Marriage, and the Management of Ambiguity among HIV-Positive Women in Northern Nigeria.支持小组、婚姻与尼日利亚北部感染艾滋病毒女性的模糊性管理
Anthropol Q. 2009 Spring;82(2):369-400. doi: 10.1353/anq.0.0067.
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Migrancy and HIV/AIDS: a historical perspective.移民与艾滋病毒/艾滋病:历史视角
S Afr Hist J. 2001(45):103-23. doi: 10.1080/02582470108671404.
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Living with death in a time of AIDS: a rural South African case study.艾滋病时代与死亡共存:南非农村案例研究
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