Lefkowitz Debra S, Fitzgerald Christopher J, Zelikovsky Nataliya, Barlow Katherine, Wray Jo
The Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Pediatr Transplant. 2014 Jun;18(4):327-35. doi: 10.1111/petr.12260.
Assessment of psychosocial functioning is an often-included component of the pretransplant evaluation process. This study reviews several domains of assessment that have been related to post-transplant outcomes across solid organ transplant populations. These include evaluation of patient and family past adherence, knowledge about the transplantation process, and their neurocognitive, psychological, and family functioning. To date, few comprehensive pretransplant evaluation measures have been standardized for use with children; however, several assessment measures used to evaluate the aforementioned domains are reviewed throughout the study. Additionally, this article discusses some developmental, illness-specific, and cultural considerations in conducting the psychosocial evaluation. We also discuss ethical issues specific to the pediatric psychosocial evaluation. Recommendations are advanced to promote a comprehensive evaluation that identifies family strengths and risk factors as they begin the transplant journey.
心理社会功能评估是移植前评估过程中经常包含的一个组成部分。本研究回顾了几个评估领域,这些领域与实体器官移植人群的移植后结果相关。这些领域包括对患者及其家属过去的依从性、对移植过程的了解以及他们的神经认知、心理和家庭功能的评估。迄今为止,很少有全面的移植前评估措施针对儿童进行标准化;然而,在整个研究过程中,对用于评估上述领域的几种评估措施进行了回顾。此外,本文讨论了在进行心理社会评估时的一些发育、疾病特异性和文化方面的考虑因素。我们还讨论了儿科心理社会评估特有的伦理问题。本文提出了一些建议,以促进全面评估,在家庭开始移植之旅时识别其优势和风险因素。