Cushman Grace K, Eaton Cyd K, Gutierrez-Colina Ana M, Quast Lauren F, Lee Jennifer L, Reed-Knight Bonney, Mee Laura L, George Roshan, Blount Ronald L
Department of Psychology.
Division of Pulmonary and Critical Care Medicine.
Fam Syst Health. 2019 Dec;37(4):291-301. doi: 10.1037/fsh0000449. Epub 2019 Oct 31.
Better family adjustment following pediatric solid organ transplantation has been associated with a number of beneficial medical and psychosocial outcomes. Yet few studies have examined which pretransplant variables are associated with posttransplant family adjustment. This information can aid in identifying families that may need support going into the transplantation process and those who are at lower risk of worse posttransplant adjustment.
The sample included 66 parents of children with solid organ transplants and 22 children with solid organ transplants. Information regarding demographic factors, parent and child emotional functioning, and child social support was collected during the child's pretransplant evaluation and information on family adjustment was collected 6 months after transplantation.
Results indicated that pretransplant demands such as worse parent and child emotional functioning were related to worse family adjustment 6 months after transplantation. Pretransplant capabilities (i.e., higher family income, parent education level, parent marital status, child social support) were not associated with posttransplant family adjustment.
Pretransplant family demands such as parent and child emotional functioning, as opposed to family capabilities, should be assessed by family health care team members prior to transplantation because they may be related to worse family adjustment after the transplant. We offer recommendations for ways to assess and, if indicated, intervene upon pretransplant family demands in an effort to decrease the risk of worse posttransplant family adjustment. (PsycINFO Database Record (c) 2019 APA, all rights reserved).
小儿实体器官移植后更好的家庭适应与许多有益的医学和心理社会结果相关。然而，很少有研究考察哪些移植前变量与移植后家庭适应有关。这些信息有助于识别在移植过程中可能需要支持的家庭以及移植后适应不良风险较低的家庭。
样本包括66名实体器官移植儿童的父母和22名实体器官移植儿童。在儿童移植前评估期间收集了有关人口统计学因素、父母和儿童情绪功能以及儿童社会支持的信息，并在移植后6个月收集了家庭适应情况的信息。
结果表明，移植前的需求，如父母和儿童较差的情绪功能，与移植后6个月较差的家庭适应有关。移植前的能力（即较高的家庭收入、父母教育水平、父母婚姻状况、儿童社会支持）与移植后家庭适应无关。
移植前家庭需求，如父母和儿童情绪功能，而非家庭能力，应由家庭医疗团队成员在移植前进行评估，因为它们可能与移植后较差的家庭适应有关。我们提供了评估移植前家庭需求的方法建议，并在必要时进行干预，以降低移植后家庭适应不良的风险。（PsycINFO数据库记录（c）2019美国心理学会，保留所有权利）
