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生殖器银屑病认知项目:为生殖器银屑病患者提供身心护理。

Genital psoriasis awareness program: physical and psychological care for patients with genital psoriasis.

作者信息

Meeuwis Kim A P, de Hullu Joanne A, IntHout Joanna, Hendriks Iris M P, Sparreboom Emilie E, Massuger Leon F A G, van de Kerkhof Peter C M, van Rossum Michelle M

机构信息

Department of Dermatology, Radboud university medical center, PO Box 9101, 6500 HB Nijmegen, The Netherlands.

出版信息

Acta Derm Venereol. 2015 Feb;95(2):211-6. doi: 10.2340/00015555-1885.

DOI:10.2340/00015555-1885
PMID:24806592
Abstract

Genital psoriasis is a neglected manifestation of psoriasis, although it affects numerous patients and has major effects on sexual quality of life (SQoL). We aimed to assess the value of specialised care for patients with genital psoriasis. Patients were treated for at least one year at a specialised research outpatient clinic with extensive attention for genital lesions and SQoL. The genital lesions were treated according to a stepwise algorithm. First follow-up was planned after 6 weeks; subsequent follow-up visits were scheduled every 3 months. At every visit, psoriasis severity and SQoL were measured with validated tools. Differences in scores between visits were analysed by a mixed model for repeated measures. Forty-two patients were included (M:F = 25:17). All objective and subjective genital psoriasis severity and QoL parameters improved significantly within the first follow-up period of approximately 6 weeks. In female patients, SQoL also significantly improved. In conclusion, genital psoriasis can relatively easy be treated within limited time exposure, resulting in significant improvement of QoL. Prompt and simple adjustments in the provided care are enough to accomplish this.

摘要

生殖器银屑病是银屑病的一种被忽视的表现形式,尽管它影响众多患者并对性生活质量(SQoL)有重大影响。我们旨在评估对生殖器银屑病患者进行专科护理的价值。患者在一家专科研究门诊接受了至少一年的治疗,对生殖器病变和性生活质量给予了广泛关注。生殖器病变根据逐步算法进行治疗。首次随访计划在6周后进行;随后的随访安排为每3个月一次。每次就诊时,使用经过验证的工具测量银屑病严重程度和性生活质量。就诊时得分的差异通过重复测量的混合模型进行分析。纳入了42例患者(男:女 = 25:17)。在大约6周的首次随访期内,所有客观和主观的生殖器银屑病严重程度及生活质量参数均有显著改善。在女性患者中,性生活质量也有显著改善。总之,生殖器银屑病在有限的治疗时间内相对容易治疗,可使生活质量得到显著改善。在所提供的护理中进行及时且简单的调整就足以实现这一点。

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