Wright F Virginia, Majnemer Annette
Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada Department of Physical Therapy, University of Toronto, Toronto, Canada
School of Physical & Occupational Therapy, McGill University, Montréal, Quebec, Canada Montreal Children's Hospital-McGill University Health Centre, Montréal, Quebec, Canada.
J Child Neurol. 2014 Aug;29(8):1055-65. doi: 10.1177/0883073814533423. Epub 2014 May 11.
Accurate and well-targeted measurement of a child's abilities and participation in daily activities pre- and post-intervention is essential to understanding the effects of therapies provided by pediatric practitioners. There is growing interest in identification of outcome core sets for specified client groups. This article elaborates on the concepts to consider when selecting and interpreting measures from an outcomes toolbox for children with cerebral palsy. Principles discussed include use of self-report measures to open a dialogue with the child/parent; a holistic assessment approach to identify a child's challenges, strengths, and contextual factors that can influence functioning; links between measurement and heightened engagement of the child/family in the rehabilitation process and goals; and the need to plan the evaluation and dialogue aspects of the assessment process. If clinicians across the international rehabilitation community draw from the same toolbox, the end result could be a cohesive approach and common language to outcome measurement.
准确且有针对性地测量儿童在干预前后的能力以及参与日常活动的情况，对于理解儿科从业者所提供治疗的效果至关重要。人们对为特定客户群体确定结果核心集的兴趣日益浓厚。本文详细阐述了从脑瘫儿童结果工具箱中选择和解释测量方法时应考虑的概念。讨论的原则包括使用自我报告测量方法与儿童/家长展开对话；采用整体评估方法来识别儿童的挑战、优势以及可能影响其功能的背景因素；测量与儿童/家庭在康复过程及目标中的更高参与度之间的联系；以及规划评估过程中评估和对话方面的必要性。如果国际康复界的临床医生都使用同一个工具箱，最终结果可能是形成一种统一的结果测量方法和通用语言。
