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本文引用的文献

1
Investigating suspected cancer clusters and responding to community concerns: guidelines from CDC and the Council of State and Territorial Epidemiologists.调查可疑癌症聚集区并回应社区关切:美国疾病控制与预防中心和州及地区流行病学家理事会的指南。
MMWR Recomm Rep. 2013 Sep 27;62(RR-08):1-24.
2
Cancer clusters in the USA: what do the last twenty years of state and federal investigations tell us?美国的癌症聚集区:过去二十年的州和联邦调查告诉了我们什么?
Crit Rev Toxicol. 2012 Jul;42(6):474-90. doi: 10.3109/10408444.2012.675315. Epub 2012 Apr 21.
3
Lay and expert interpretations of cancer cluster evidence.对癌症聚集性证据的外行和专家解读。
Risk Anal. 2008 Dec;28(6):1531-8. doi: 10.1111/j.1539-6924.2008.01110.x. Epub 2008 Sep 15.
4
Individual- and community-level effects on risk perception in cancer cluster investigations.癌症聚集性调查中个体和社区层面因素对风险认知的影响。
Risk Anal. 2008 Feb;28(1):161-78. doi: 10.1111/j.1539-6924.2008.01007.x.
5
An update on cancer cluster activities at the Centers for Disease Control and Prevention.疾病控制与预防中心癌症聚集性活动的最新情况。
Environ Health Perspect. 2007 Jan;115(1):165-71. doi: 10.1289/ehp.9021.
6
Understanding cancer clusters.了解癌症聚集现象。
CA Cancer J Clin. 2004 Sep-Oct;54(5):273-80. doi: 10.3322/canjclin.54.5.273.
7
Things to know and do about cancer clusters.关于癌症聚集需要了解和做的事情。
Cancer Invest. 2002;20(5-6):810-6. doi: 10.1081/cnv-120003546.
8
Public requests for cancer cluster investigations: a survey of state health departments.公众对癌症聚集性调查的请求:对各州卫生部门的一项调查
Am J Public Health. 2000 Aug;90(8):1300-2. doi: 10.2105/ajph.90.8.1300.
9
Appropriate public health responses to clusters: the art of being responsibly responsive.针对聚集性疫情的适当公共卫生应对措施:负责任地做出响应的艺术。
Am J Epidemiol. 1990 Jul;132(1 Suppl):S48-52. doi: 10.1093/oxfordjournals.aje.a115788.
10
Twenty-two years of cancer cluster investigations at the Centers for Disease Control.疾病控制中心进行的22年癌症聚集性调查。
Am J Epidemiol. 1990 Jul;132(1 Suppl):S43-7. doi: 10.1093/oxfordjournals.aje.a115787.

倾听民众的声音:强化癌症集群调查方法。

Stop and listen to the people: an enhanced approach to cancer cluster investigations.

机构信息

Brian W. Simpson is with the Office of Communications, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD. Patti Truant and Beth A. Resnick are with the Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health.

出版信息

Am J Public Health. 2014 Jul;104(7):1204-8. doi: 10.2105/AJPH.2013.301836. Epub 2014 May 15.

DOI:10.2105/AJPH.2013.301836
PMID:24832152
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4056245/
Abstract

Cancer cluster investigations need to address the disconnect between traditional public health approaches and human needs. Cancer cluster investigations often magnify fear and uncertainty because they rarely find a definitive environmental cause. Traditional approaches emphasize population-level data analysis and undervalue active listening. Because few studies have explored active listening in cancer cluster investigations, we conducted a descriptive oral history case study of a Frederick, Maryland, investigation. We interviewed 12 community members and 9 public health professionals about the investigation of a perceived cancer cluster. Many believed it was linked to environmental contamination at Fort Detrick, a local US Army base. We propose enhanced active listening that seeks out peoples' perspectives, validates their concerns, and engages them in the investigative process.

摘要

癌症集群调查需要解决传统公共卫生方法与人类需求之间的脱节问题。癌症集群调查常常会放大恐惧和不确定性,因为它们很少能找到明确的环境原因。传统方法强调基于人群的数据分析,而低估了积极倾听的作用。由于很少有研究探讨过在癌症集群调查中积极倾听的问题,我们对马里兰州弗雷德里克市的一次调查进行了描述性口述历史案例研究。我们采访了 12 名社区成员和 9 名公共卫生专业人员,了解他们对一个被认为是癌症集群的调查。许多人认为这与当地美国陆军基地迪特里克堡的环境污染有关。我们提出了增强型积极倾听,旨在寻找人们的观点,验证他们的关切,并让他们参与调查过程。