Bahrami Masoud, Farzi Saba
Department of Adult Health Nursing, Nursing and Midwifery Care Research Center, Faculty of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran.
Iran J Nurs Midwifery Res. 2014 Mar;19(2):119-26.
The family caregivers of the people with cancer such as breast cancer experience a decrease in their quality of life and an increase of their caring burden. In most of the cases, the researchers consider the quality of life and physical and psychological problems in patients with cancer and pay less attention to the family caregivers. To reduce the caring burden imposed to the caregivers and improve their quality of life, supportive strategies such as problem solving can be used. These interventions may have benefits for the caregivers although the research results are contradictory. The aim of this research was to determine the effect of a supportive educational program, based on COPE model, which focuses on creativity, optimism, planning, and expert information on individuals, on the caring burden and quality of life in the family caregivers of women with breast cancer.
The present study is a clinical trial, which was conducted in Seyed-Al-Shohada Hospital of Isfahan University of Medical Sciences and a private center of chemotherapy in 2012. In this study, researchers investigated the effect of a supportive educational program based on COPE model on the caring burden and quality of life in the family caregivers of women with breast cancer. This supportive educational program included two hospital visits and two telephone sessions based on COPE model for 9 days. A total of 64 patients were selected based on the inclusion criteria and randomly assigned into two groups. Data were collected by use of Caregiver Quality of Life Index-Cancer (CQOL-C), World Health Organization Quality of Life - Bref(WHOQOL-Bref)_, and Zarit caring burden at the beginning of the intervention and a month after the intervention.
The results showed that in the experimental group, the mean score of physical, mental, spiritual, environmental domains and overall quality of life in the family caregivers was significantly increased compared to the control group, but there was no change in the social domain of quality of life in the two groups. In the experimental group, the mean score of caring burden among the caregivers was significantly decreased compared to the control group.
Results of the present study suggested that a supportive educational program can improve physical, mental, spiritual, environmental domains and overall quality of life. It can also decrease the caring burden in the family caregivers of women with breast cancer. Further studies are needed to evaluate the impact of these interventions on quality of life and caring burden in the family caregivers of women with breast cancer undergoing other cancer treatments.
乳腺癌等癌症患者的家庭护理人员生活质量下降,护理负担增加。在大多数情况下,研究人员关注癌症患者的生活质量以及身体和心理问题,而对家庭护理人员关注较少。为减轻护理人员的护理负担并提高其生活质量,可采用解决问题等支持性策略。尽管研究结果相互矛盾,但这些干预措施可能对护理人员有益。本研究的目的是确定基于应对(COPE)模型的支持性教育项目对乳腺癌女性患者家庭护理人员的护理负担和生活质量的影响,该模型侧重于创造力、乐观主义、规划以及针对个人的专家信息。
本研究是一项临床试验,于2012年在伊斯法罕医科大学的赛义德 - 阿尔 - 肖哈达医院和一个私立化疗中心进行。在本研究中,研究人员调查了基于COPE模型的支持性教育项目对乳腺癌女性患者家庭护理人员的护理负担和生活质量的影响。这个支持性教育项目包括基于COPE模型的两次医院就诊和两次为期9天的电话咨询。根据纳入标准共选取64例患者,并随机分为两组。在干预开始时和干预一个月后,使用癌症护理人员生活质量指数(CQOL - C)、世界卫生组织生活质量简表(WHOQOL - Bref)和扎里特护理负担量表收集数据。
结果显示,与对照组相比,实验组家庭护理人员在身体、心理、精神、环境领域的平均得分以及总体生活质量显著提高,但两组在生活质量的社会领域没有变化。与对照组相比,实验组护理人员的护理负担平均得分显著降低。
本研究结果表明,支持性教育项目可以改善身体、心理、精神、环境领域以及总体生活质量。它还可以减轻乳腺癌女性患者家庭护理人员的护理负担。需要进一步研究来评估这些干预措施对接受其他癌症治疗的乳腺癌女性患者家庭护理人员的生活质量和护理负担的影响。