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通过在常规护理中嵌入依从性测量,将囊性纤维化护理从抢救转向预防。

Moving cystic fibrosis care from rescue to prevention by embedding adherence measurement in routine care.

机构信息

Sheffield Adult Cystic Fibrosis Unit, Sheffield Teaching Hospitals; Health Services Research Unit, School for Health and Related Research (ScHARR), University of Sheffield.

Sheffield Adult Cystic Fibrosis Unit, Sheffield Teaching Hospitals.

出版信息

Paediatr Respir Rev. 2014 Jun;15 Suppl 1:16-8. doi: 10.1016/j.prrv.2014.04.007. Epub 2014 Apr 13.

DOI:10.1016/j.prrv.2014.04.007
PMID:24835307
Abstract

Cystic fibrosis [CF] is a chronic disease in which preventative treatment with nebulised antibiotics can reduce pulmonary exacerbations that otherwise require rescue therapy. However, adherence is low. Making adherence to maintenance treatment visible is a crucial step towards improving adherence. In this article, we discuss how adherence data can be used to support Quality Improvement in CF through behaviour change in both people with cystic fibrosis and their clinical teams.

摘要

囊性纤维化 [CF] 是一种慢性疾病,通过雾化抗生素进行预防性治疗可以减少需要抢救治疗的肺部恶化。然而,患者的依从性较低。使维持治疗的依从性可见是改善依从性的关键步骤。在本文中,我们讨论了如何通过囊性纤维化患者及其临床团队的行为改变,利用依从性数据来支持 CF 的质量改进。

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Paediatr Respir Rev. 2014 Jun;15 Suppl 1:16-8. doi: 10.1016/j.prrv.2014.04.007. Epub 2014 Apr 13.
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A Participatory Approach Involving Patients with Cystic Fibrosis and Healthcare Professionals for the Co-Design of an Adherence-Enhancing Intervention Toolkit.一种让囊性纤维化患者和医疗保健专业人员共同参与的方法,用于共同设计一个增强依从性的干预工具包。
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Development of an intervention to increase adherence to nebuliser treatment in adults with cystic fibrosis: CFHealthHub.开发一项干预措施以提高成年囊性纤维化患者对雾化治疗的依从性:CFHealthHub
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