Miller Wendy R
Indiana University School of Nursing, Department of Science of Nursing Care, Sycamore Hall, Room 441, 1033 East 3rd Street, Bloomington, IN 47405, United States.
Seizure. 2014 Sep;23(8):592-7. doi: 10.1016/j.seizure.2014.04.010. Epub 2014 Apr 28.
Older adults have the highest incidence of new-onset epilepsy, yet there is a lack of self-management interventions to ensure that this population achieves desirable outcomes. In order to develop patient-centered interventions for older adults with epilepsy, self-management outcomes of importance to these patients must first be explored. The purpose of this study was to describe what outcomes older adults diagnosed with epilepsy late in life hope to achieve in self-managing their condition.
Qualitative description was used. 20 older adults took part in semi-structured interviews. Data were analyzed using conventional content analysis.
Six themes emerged - Maintaining Normalcy, We Want to be Involved, Well-Equipped, Seizure Freedom, Fitting Epilepsy in with Other Conditions, Incongruence with Provider Goals.
These results add to the extant literature, and provide knowledge on which patient-centered epilepsy self-management interventions can be developed. In addition, these results can inform the development of a patient-centered outcome measure for older adults with epilepsy. Such a measure could be used in conjunction with existing measures related to disease status (seizure frequency, etc.) to ensure that outcomes pertinent to both patients and providers are targeted and measured.
老年人新发癫痫的发病率最高，但缺乏自我管理干预措施来确保这一人群取得理想的治疗效果。为了开发以患者为中心的老年癫痫患者干预措施，必须首先探索对这些患者重要的自我管理结果。本研究的目的是描述晚年被诊断为癫痫的老年人在自我管理病情方面希望实现的结果。
采用定性描述法。20名老年人参与了半结构化访谈。使用常规内容分析法对数据进行分析。
出现了六个主题——保持正常生活、我们希望参与其中、准备充分、无癫痫发作、将癫痫与其他疾病相适应、与医疗服务提供者目标不一致。
这些结果丰富了现有文献，并为开发以患者为中心的癫痫自我管理干预措施提供了知识。此外，这些结果可为制定以患者为中心的老年癫痫患者结局指标提供参考。这样的指标可与现有的与疾病状态（癫痫发作频率等）相关的指标结合使用，以确保针对并衡量与患者和医疗服务提供者相关的结局。
