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在家照顾精神分裂症患者:探讨家庭照顾者的角色困扰与生活质量之间的联系。

Caring for persons with schizophrenia at home:examining the link between family caregivers’ role distress and quality of life.

作者信息

Quah Stella

出版信息

Sociol Health Illn. 2014 May;36(4):596-612. doi: 10.1111/1467-9566.12177.

Abstract

This article re-examines the link between role distress and quality of life of family caregivers of a loved one with schizophrenia by exploring the impact of role overload (defined as spending 7 or more hours daily looking after the care recipient). Role theory and symbolic interactionism provide the conceptual background to this study. The research question is: under what conditions does role distress reduce quality of life? The answer helps us identify circumstances under which caregivers may be able to carry out their stressful caregiving role while minimising a decline in their quality of life. The data are from a purposive sample of 47 family caregivers in Singapore who were interviewed in person using a semi-structured questionnaire. The data analysis includes non-parametric tests,exploratory factor analysis and relative risks estimates. The findings show that the inverse association between role distress and quality of life found in most studies of family caregivers changes when hours of care are taken into consideration.While role distress is found among all family caregivers it only reduces the family caregiver’s quality of life in situations of role overload. The implications for the situation of family caregivers are discussed.

摘要

本文通过探讨角色过载(定义为每天花费7小时或更多时间照顾受照顾者)的影响,重新审视了精神分裂症患者家属照顾者的角色困扰与生活质量之间的联系。角色理论和符号互动主义为这项研究提供了概念背景。研究问题是:在什么情况下角色困扰会降低生活质量?答案有助于我们确定照顾者在何种情况下能够履行其压力重重的照顾角色,同时尽量减少生活质量的下降。数据来自新加坡47名家庭照顾者的目的抽样,他们通过半结构化问卷接受了面对面访谈。数据分析包括非参数检验、探索性因素分析和相对风险估计。研究结果表明,在大多数家庭照顾者研究中发现的角色困扰与生活质量之间的负相关关系,在考虑照顾时长时会发生变化。虽然在所有家庭照顾者中都发现了角色困扰,但只有在角色过载的情况下,它才会降低家庭照顾者的生活质量。文中讨论了这些结果对家庭照顾者状况的影响。

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