Van Dongen Isabella, Josephsson Staffan, Ekstam Lisa
Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet , Sweden.
Scand J Occup Ther. 2014 Sep;21(5):348-58. doi: 10.3109/11038128.2014.903995. Epub 2014 May 22.
This qualitative study explored how some working Austrians experienced and coped with changes in their daily occupations after becoming informal carers of persons who had had a stroke. The study provides insights into the working carers' occupational experiences and strategies during a period of pronounced life changes.
Three participants, who were employed in full- or part-time work, as well as being informal carers of persons who had had a stroke, were interviewed on two occasions. The data from these interviews were analysed using Interpretative Phenomenological Analyses.
Carers found themselves in an ongoing process, ranging from the disruption of daily occupations to their eventual restructure. First, the stroke led to involuntary changes in the carers' daily life, which resulted in challenges in their own, and in shared, occupations. Second, carers actively changed their values and performance of occupations, which appeared to be a strategy to shape their well-being. Paid work was found to be a stabilizing and balancing occupation, which contributed to coping and the well-being of carers.
The authors' findings demonstrate the benefits of paid work and engagement in meaningful occupation for the carers' well-being. These results should encourage occupational therapists to be sensitive to the complexity of the lives of working informal carers.
这项定性研究探讨了一些在职奥地利人在成为中风患者的非专业护理人员后，是如何体验和应对日常工作变化的。该研究深入了解了在职护理人员在生活发生显著变化期间的职业经历和应对策略。
对三名参与者进行了两次访谈，他们均有全职或兼职工作，同时也是中风患者的非专业护理人员。使用解释现象学分析法对这些访谈数据进行了分析。
护理人员发现自己处于一个持续的过程中，从日常工作的中断到最终的重新调整。首先，中风导致护理人员日常生活的非自愿变化，这给他们自己以及共同的工作带来了挑战。其次，护理人员积极改变他们的职业价值观和工作表现，这似乎是一种塑造自身幸福感的策略。有偿工作被发现是一种稳定和平衡的职业，有助于护理人员应对困难并提升幸福感。
作者的研究结果表明，有偿工作和参与有意义的职业对护理人员的幸福感有益。这些结果应促使职业治疗师对在职非专业护理人员生活的复杂性保持敏感。
