Sjöström Jonas, von Essen Louise, Grönqvist Helena
U-CARE, Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
JMIR Res Protoc. 2014 May 23;3(2):e28. doi: 10.2196/resprot.3202.
The prevalence of information technology (IT) in society is a foundation for new modes of interaction between patients and health specialists. IT plays an important role in the renewal of care. Several countries have incorporated eHealth plans into their national health strategies. Part of the eHealth evolution concerns Internet psychological treatment and psychosocial care. These interventions are complex to design and evaluate due to legal, ethical, organizational, technical, and methodological challenges.
The objective of our study was to seek to make explicit contributions to the understanding of ideals in eHealth research, and illuminate their implications for establishing an effective research environment. Our analysis draws from three years of experience in establishing an eHealth research environment, and the literature.
We worked inductively to characterize challenging research ideals, and their origins, in our environment. Thereafter, we made a selective search of the literature to scrutinize and illuminate each ideal and it's implications.
In this work, we propose a structured approach to address ideals in eHealth research. The scrutinized ideals are accountability, innovation, rigor, relevance, and sustainability. The approach supports researchers to systematically understand the ideals, their origin, and to manage their implications within an eHealth research environment.
The complexity of eHealth research causes a need for sustainable, multi-disciplinary research environments. There is a need for a structured approach to organize eHealth research. The proposed approach helps to systematically scrutinize ideals, thus promoting high quality research.
信息技术在社会中的普及是患者与健康专家之间新型互动模式的基础。信息技术在医疗服务的更新中发挥着重要作用。一些国家已将电子健康计划纳入其国家卫生战略。电子健康发展的一部分涉及互联网心理治疗和心理社会护理。由于法律、伦理、组织、技术和方法等方面的挑战，这些干预措施的设计和评估很复杂。
我们研究的目的是力求对理解电子健康研究中的理想情况做出明确贡献，并阐明其对建立有效研究环境的影响。我们的分析借鉴了建立电子健康研究环境三年的经验以及相关文献。
我们通过归纳法来描述我们环境中具有挑战性的研究理想情况及其来源。此后，我们对文献进行了选择性检索，以审视和阐明每个理想情况及其影响。
在这项工作中，我们提出了一种结构化方法来处理电子健康研究中的理想情况。经过审视的理想情况包括问责制、创新性、严谨性、相关性和可持续性。该方法支持研究人员系统地理解这些理想情况、其来源，并在电子健康研究环境中管理其影响。
电子健康研究的复杂性导致需要可持续的多学科研究环境。需要一种结构化方法来组织电子健康研究。所提出的方法有助于系统地审视理想情况，从而促进高质量研究。
