Macdonald Graham G, Townsend Anne F, Adam Paul, Li Linda C, Kerr Sheila, McDonald Michael, Backman Catherine L
Arthritis Research Canada, Richmond, BC, Canada.
Rehabilitation Sciences, University of British Columbia, Vancouver, BC, Canada.
J Med Internet Res. 2018 Jan 26;20(1):e31. doi: 10.2196/jmir.8983.
eHealth is a broad term referring to the application of information and communication technologies in the health sector, ranging from health records to telemedicine and multiple forms of health education and digital tools. By providing increased and anytime access to information, opportunities to exchange experiences with others, and self-management support, eHealth has been heralded as transformational. It has created a group of informed, engaged, and empowered patients as partners, equipped to take part in shared decision making and effectively self-manage chronic illness. Less attention has been given to health care professionals' (HCPs) experiences of the role of eHealth in patient encounters.
The objective of this study was to examine HCPs' perspectives on how eHealth affects their relationships with patients living with multiple chronic conditions, as well as its ethical and practical ramifications.
We interviewed HCPs about their experiences with eHealth and its impact on the office visit. Eligible participants needed to report a caseload of ≥25% of patients with multimorbidity to address issues of managing complex chronic conditions and coordination of care. We used a semistructured discussion guide for in-depth interviews, and follow-up interviews served to clarify and expand upon initial discussions. Constant comparisons and a narrative approach guided the analyses, and a relational ethics conceptual lens was applied to the data to identify emergent themes.
A total of 12 physicians and nurses (6 male, 6 female; median years of practice=13) participated. eHealth tools most frequently described were Web-based educational resources for patients and Web-based resources for HCPs such as curated scientific summaries on diagnostic criteria, clinical therapies, and dosage calculators. Analysis centered on a grand theme of the two-way conversation between HCPs and patients, which addresses a general recentering of the ethical relationship between HCPs and patients around engagement. Subthemes explain the evolution of the two-way conversation, and having, using, and supporting the two-way conversation with patients, primarily as this relates to achieving adherence and health outcomes.
Emerging ethical concerns were related to the ambiguity of the ideal of empowered patients and the ways in which health professionals described enacting those ideals in practice, showing how the cultural shift toward truly mutually respectful and collaborative practice is in transition. HCPs aim to act in the best interests of their patients; the challenge is to benefit from emergent technologies that may enhance patient-HCP interactions and effective care, while abiding by regulations, dealing with the strictures of the technology itself, and managing changing demands on their time.
电子健康是一个广义术语,指信息通信技术在卫生领域的应用,涵盖从健康记录到远程医疗以及多种形式的健康教育和数字工具。通过提供更多且随时可得的信息、与他人交流经验的机会以及自我管理支持,电子健康被誉为具有变革性。它造就了一批有见识、积极参与且有能力的患者成为合作伙伴,能够参与共同决策并有效自我管理慢性病。然而,医疗保健专业人员(HCPs)在患者诊疗过程中对电子健康作用的体验却较少受到关注。
本研究的目的是考察医疗保健专业人员对电子健康如何影响他们与患有多种慢性病患者关系的看法,以及其伦理和实际影响。
我们就医疗保健专业人员使用电子健康的经历及其对门诊的影响进行了访谈。符合条件的参与者需要报告其病例中有≥25%的患者患有多种疾病,以解决复杂慢性病管理和护理协调问题。我们使用半结构化讨论指南进行深入访谈,并通过后续访谈来澄清和扩展初步讨论内容。持续比较和叙事方法指导分析过程,并运用关系伦理概念框架对数据进行分析以识别新出现的主题。
共有12名医生和护士(6名男性,6名女性;执业年限中位数 = 13年)参与。最常被提及的电子健康工具是面向患者的基于网络的教育资源以及面向医疗保健专业人员的基于网络的资源,如关于诊断标准、临床治疗和剂量计算器的精选科学总结。分析集中在医疗保健专业人员与患者之间双向对话这一宏大主题上,该主题围绕着医疗保健专业人员与患者之间伦理关系近期以参与为核心的重新定位。子主题解释了双向对话的演变,以及拥有、使用和支持与患者的双向对话,主要涉及实现依从性和健康结果。
新出现的伦理问题与赋权患者这一理想的模糊性以及医疗保健专业人员在实践中描述如何践行这些理想的方式有关,表明向真正相互尊重和协作实践的文化转变正处于过渡阶段。医疗保健专业人员旨在为患者的最大利益行事;挑战在于如何从可能增强患者与医疗保健专业人员互动及有效护理的新兴技术中受益,同时遵守法规、应对技术本身的限制以及管理对他们时间的不断变化的需求。