Konkol L, Lineberry J, Gottlieb J, Shelby P E, Miller J J, Lorig K
Arthritis Care Res. 1989 Jun;2(2):40-8. doi: 10.1002/anr.1790020204.
State of the art patient education programs have as their goals changes in behaviors, coping styles, health status, and/or costs. The accomplishment of these goals often involves not only the patient but also his or her whole family. This is especially true if the patient is a child. Based on this premise, we undertook an educational needs assessment of 50 children with juvenile arthritis (JA) and their families. Through utilization of a grounded theory methodology, open-ended questionnaires were completed by JA children, their parents, and their siblings. The resulting analysis suggests (1) the need for family-based education, (2) differing needs of various family members, and (3) several hypotheses for further study.
先进的患者教育项目旨在改变患者的行为、应对方式、健康状况和/或成本。这些目标的实现通常不仅涉及患者本人，还涉及其整个家庭。如果患者是儿童，情况尤其如此。基于这一前提，我们对50名幼年型关节炎（JA）患儿及其家庭进行了教育需求评估。通过运用扎根理论方法，JA患儿、其父母和兄弟姐妹完成了开放式问卷调查。分析结果表明：（1）需要开展以家庭为基础的教育；（2）不同家庭成员有不同需求；（3）提出了几个有待进一步研究的假设。
