Hagglund K J, Doyle N M, Clay D L, Frank R G, Johnson J C, Pressly T A
Arthritis Care Res. 1996 Feb;9(1):35-41. doi: 10.1002/art.1790090108.
Family resources and coping skills are important to adaptation to pediatric chronic illness. Psychological and educational interventions have been found to enhance the coping skills of children with juvenile rheumatic disease (JRD) and their families. We examined the efficacy of a 3-day family retreat as a multidisciplinary, comprehensive treatment.
Children with JRD and their caregivers completed questionnaires assessing the children's behavioral and emotional functioning, pain, strain on caregivers' work and leisure activities, and caregivers' psychological distress before and 6 months after the family retreat. Principal caregivers were both parents for 16 children, mothers only for 10 children, and an aunt for 1 child.
Improvements were found in children's emotional functioning, strain on caregivers' work, and strain on caregivers' leisure activities. Reductions in reported pain were not consistently revealed.
Family retreats are an efficacious, multidisciplinary approach to helping families of children with JRD cope with the disease and its manifestations. Importantly, retreats offer a comprehensive intervention package that might not be available to families on an individual basis.
家庭资源和应对技巧对于适应小儿慢性病至关重要。研究发现，心理和教育干预可提高青少年风湿性疾病（JRD）患儿及其家庭的应对技巧。我们考察了为期3天的家庭静修作为一种多学科综合治疗方法的疗效。
JRD患儿及其照料者在家庭静修前和静修6个月后完成问卷调查，评估患儿的行为和情绪功能、疼痛、照料者工作和休闲活动的压力以及照料者的心理困扰。主要照料者中，16名患儿的是父母双方，10名患儿的是母亲，1名患儿的是阿姨。
患儿的情绪功能、照料者工作压力和照料者休闲活动压力均有改善。报告的疼痛减轻情况并不一致。
家庭静修是一种有效的多学科方法，可帮助JRD患儿家庭应对疾病及其表现。重要的是，静修为家庭提供了一个综合干预方案，而这可能是单个家庭无法获得的。
