Hartley B, Fuller C C
Rheumatology Clinics, Hospital for Sick Children, Toronto, Ontario, Canada.
J Pediatr Nurs. 1997 Apr;12(2):100-9. doi: 10.1016/s0882-5963(97)80030-9.
Juvenile arthritis is the fifth most common chronic illness in children. When a child is diagnosed with juvenile arthritis, the family must adjust in many ways in order to cope with the demands of this illness. This article provides an overview of the disease, presents the case history of two sisters with polyarticular arthritis, and discusses how nurses and other health team members can empower a family to manage more successfully with this disease and thereby enhance quality of life. Professional resources that aid families coping including educating the family about the disease, providing psychologic support, as well as knowledge and assistance for optimal physical functioning and maintaining energy reserves, and suggesting strategies to sustain self esteem, motivation and hope.
青少年关节炎是儿童中第五大常见慢性病。当一个孩子被诊断出患有青少年关节炎时，家庭必须在许多方面做出调整，以应对这种疾病带来的各种需求。本文概述了这种疾病，介绍了两位患有多关节型关节炎姐妹的病例史，并讨论了护士和其他医疗团队成员如何帮助家庭更成功地应对这种疾病，从而提高生活质量。帮助家庭应对的专业资源包括向家庭介绍该疾病的相关知识、提供心理支持，以及为实现最佳身体机能和维持能量储备提供知识与帮助，同时提出维持自尊、动力和希望的策略。
