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与患有晚期癌症的父母一起生活的青少年:文献综述

Adolescents living with a parent with advanced cancer: a review of the literature.

作者信息

Phillips Farya

机构信息

School of Social Work, The University of Texas at Austin, Austin, TX, USA.

出版信息

Psychooncology. 2014 Dec;23(12):1323-39. doi: 10.1002/pon.3570. Epub 2014 Jun 9.

DOI:10.1002/pon.3570
PMID:24911540
Abstract

OBJECTIVE

Families and children facing the death of a parent from cancer constitute a vulnerable population often overlooked by healthcare professionals and researchers. The purpose of this review is to provide a systematic analysis of the literature that examines the experiences of parents diagnosed with advanced cancer and their adolescent children.

METHODS

Reviews of quantitative, qualitative, and mixed method publications between 2000 and 2013 were selected in order to obtain the most current and timely studies. Articles published before 2000 but found to be seminal works on this topic were also included. No time limits were set on intervention studies.

RESULTS

Eighteen studies met the criteria for the content of this review, indicating the limited number of studies conducted on this topic. Articles were summarized using the following categories: original research on the impact on the family and parenting, original research on the impact on the child/adolescent, and interventions for families facing incurable cancer. The analysis was organized around the major themes found in the literature within each category.

CONCLUSIONS

These themes will allow healthcare professionals to understand implications for clinical practice and apply the knowledge gained from this analysis of literature to guide future research.

摘要

目的

面临父母因癌症去世的家庭和儿童是一个弱势群体,常常被医疗保健专业人员和研究人员忽视。本综述的目的是对有关被诊断患有晚期癌症的父母及其青春期子女经历的文献进行系统分析。

方法

选取2000年至2013年间的定量、定性和混合方法出版物综述,以获取最新和及时的研究。2000年之前发表但被认为是该主题开创性著作的文章也被纳入。干预研究没有设定时间限制。

结果

18项研究符合本综述的内容标准,表明针对该主题开展的研究数量有限。文章按照以下类别进行总结:关于对家庭和养育子女影响的原创研究、关于对儿童/青少年影响的原创研究以及针对面临无法治愈癌症的家庭的干预措施。分析围绕每个类别文献中发现的主要主题展开。

结论

这些主题将使医疗保健专业人员能够理解对临床实践的影响,并应用从该文献分析中获得的知识来指导未来的研究。

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