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父母患有癌症且有年幼子女:文献综述。

Parents' experience of cancer who have young children: a literature review.

机构信息

South Eastern Health and Social Care Trust, Cancer Services Ulster Hospital, Belfast, Northern Ireland, United Kingdom.

出版信息

Cancer Nurs. 2010 Mar-Apr;33(2):110-8. doi: 10.1097/NCC.0b013e3181c024bb.

DOI:10.1097/NCC.0b013e3181c024bb
PMID:20142737
Abstract

BACKGROUND

The National Cancer Institute estimates that 24% of adults with cancer are parenting children younger than 18 years. When a parent is diagnosed with cancer, this is a major stressor and often creates multiple problems for families.

OBJECTIVE

The aim of this article was to conduct a comprehensive review of the literature on the experience of parents with cancer who are caring for young children.

METHODS

A comprehensive review of the literature was undertaken using systematic review principles. The search strategy included five electronic bibliographic databases, using the search terms: parent, cancer, parents and cancer and communication.

RESULTS

Thirteen studies were found that focused on parents' experience of cancer. Eleven of the 13 studies used solely qualitative methodology, and 2 studies used mixed methods. Of the studies identified, the majority focused on the experience of mothers, and mainly those with a diagnosis of breast cancer. Analysis of the 13 studies on parents' experience following a diagnosis of cancer revealed 3 predominant themes: (a) being a good parent, (b) telling the children, and (c) maintaining routine at home.

CONCLUSION

The 3 themes highlight how parents with cancer struggle to know how best to talk to their children about cancer and the perceived lack of guidance and support from professionals, the feelings of guilt about not being "a good parent," and the effort required to maintain routine at home as a way of protecting their children.

IMPLICATIONS FOR PRACTICE

Support for parents with cancer on relevant parenting issues should be acknowledged as an important facet of care for oncology nurses, as a mechanism of reducing parental stress and psychological distress for the whole family.

摘要

背景

美国国家癌症研究所估计,24%的癌症成年患者有未成年子女需要照顾。当父母被诊断出患有癌症时,这是一个主要的压力源,通常会给家庭带来诸多问题。

目的

本文旨在对照顾幼儿的癌症患者父母的相关文献进行全面综述。

方法

采用系统综述原则对文献进行全面综述。检索策略包括五个电子文献数据库,使用的检索词为:父母、癌症、父母与癌症和沟通。

结果

共发现 13 项研究聚焦于父母的癌症经历。其中 11 项研究仅使用定性方法,2 项研究使用混合方法。在所确定的研究中,大多数研究聚焦于母亲的经历,且主要是那些被诊断为乳腺癌的母亲。对 13 项关于父母在癌症诊断后的经历的研究进行分析,揭示了 3 个主要主题:(a)成为一个好父母,(b)告知孩子,以及(c)在家中保持常规。

结论

这 3 个主题强调了癌症父母在与孩子谈论癌症方面的困难,以及对专业人员缺乏指导和支持的感受、因不能“成为一个好父母”而感到内疚,以及为保护孩子而在家中保持常规所需要的努力。

实践意义

应将对癌症患者父母在相关育儿问题上的支持视为肿瘤护士护理的一个重要方面,作为减轻父母压力和整个家庭心理困扰的一种机制。

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