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学龄期和青少年儿童在其父母患有非终末期癌症时的体验:一项定性研究的系统评价和元综合分析。

School-aged and adolescent children's experience when a parent has non-terminal cancer: a systematic review and meta-synthesis of qualitative studies.

机构信息

School of Nursing and Midwifery, Monash University, Victoria, Australia.

出版信息

Psychooncology. 2014 May;23(5):493-506. doi: 10.1002/pon.3457. Epub 2013 Dec 9.

DOI:10.1002/pon.3457
PMID:24323875
Abstract

OBJECTIVE

The purpose of this study was to systematically review and synthesise qualitative studies pertinent to male and female school-aged and adolescent children's experience when a parent is diagnosed with non-terminal cancer.

METHODS

A rigorous systematic review and meta-synthesis process were conducted. Seven computerised databases were searched, and 2027 articles were retrieved. After screening the titles and abstracts, full texts of 24 articles were critically appraised, and finally, 16 articles were further analysed and synthesised with a thematic-synthesis approach.

RESULTS

Five themes were identified: being informed of parental cancer, emotional concerns, changes in daily life, seeking factual information and seeking emotional support. As indicated in the results, most children had been informed of the parent's diagnosis of cancer. They suffered from a wide range of concerns when facing the situation, and their lives had been interrupted to different degrees. In order to cope with the event, children adopted various strategies. Their information and support needs were reported to have been poorly met.

CONCLUSIONS

This systematic review provides insight into the scenario of children living with a parent with non-terminal cancer and indicates some suggestions for future studies. The experience of children when the father has cancer should be further explored. Short-term and long-term impacts of parental cancer on children, especially young children within different cultural contexts, should be investigated to help health care professionals provide individualised assistance to those children.

摘要

目的

本研究旨在系统地回顾和综合与父母被诊断为非终末期癌症的男性和女性学龄期及青少年儿童经历相关的定性研究。

方法

采用严格的系统回顾和元综合方法进行研究。对 7 个计算机数据库进行了检索,共检索到 2027 篇文章。在筛选标题和摘要后,对 24 篇文章的全文进行了批判性评价,最终采用主题综合法对 16 篇文章进行了进一步分析和综合。

结果

确定了 5 个主题:父母癌症的告知、情绪问题、日常生活的改变、寻求事实信息和寻求情感支持。结果表明,大多数儿童已经被告知了父母的癌症诊断。他们在面对这种情况时会感到各种担忧,生活也会受到不同程度的干扰。为了应对这一事件,儿童采取了各种策略。他们的信息和支持需求被报告为未得到充分满足。

结论

本系统综述深入了解了儿童与非终末期癌症父母一起生活的情况,并为未来的研究提供了一些建议。应该进一步探讨父亲患癌症时儿童的经历。应该调查父母癌症对儿童的短期和长期影响,特别是不同文化背景下的年幼儿童,以帮助医疗保健专业人员为这些儿童提供个性化的帮助。

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