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被遗忘的照顾者:精神分裂症患者的兄弟姐妹。

The forgotten caregivers: Siblings of schizophrenic patients.

机构信息

Department of Psychiatry and Psychotherapy, University Medical Center Regensburg, Regensburg, Germany.

出版信息

Int J Psychiatry Clin Pract. 2009;13(4):326-37. doi: 10.3109/13651500903141400.

DOI:10.3109/13651500903141400
PMID:24916945
Abstract

Objective. The situation of caregivers of psychiatric patients is mostly focussed on burdens of parents or spouses of patients. The burden of siblings due to the illness, however, is mostly underestimated and disregarded. Methods. Thirty-seven narrative interviews with siblings of schizophrenia inpatients were analysed by using a summarizing content analysis. The founded global statements were quantitatively analysed. Regression-analysis as well as regression trees were used to evaluate the data linked with sociodemographic and disease-related variables of the patient and siblings. Results. The results showed a high proportion of siblings engaged in caregiving activities. A total of 492 individual statements were summarized in 26 global types of statements. The three most often reported burdens by the healthy siblings are: "Handling the symptoms of illness" (100%), "Emotional burden due to the illness of the sibling" (100%) and "Uncertainty in judging what amount of stress the patient can cope with" (81.1%). Linear regression and regression tree analysis show predictors for higher burdened siblings. Conclusion. Siblings of schizophrenia patients are burdened in various aspects and in a specific matter. Their special needs will therefore have to be recognised before they can receive appropriate intervention.

摘要

目的

精神疾病患者照顾者的情况主要集中在患者父母或配偶的负担上。然而,由于疾病导致的兄弟姐妹的负担却被大大低估和忽视了。

方法

对 37 名精神分裂症住院患者的兄弟姐妹进行了 37 次叙述性访谈,采用总结性内容分析法对其进行了分析。对所发现的总体陈述进行了定量分析。回归分析和回归树用于评估与患者和兄弟姐妹的社会人口学及疾病相关变量相关的数据。

结果

研究结果表明,有相当比例的兄弟姐妹参与了照顾活动。总共总结了 492 个个体陈述,归纳为 26 种总体陈述类型。健康的兄弟姐妹报告的三种最常见的负担是:“处理疾病症状”(100%)、“因兄弟姐妹患病而产生的情绪负担”(100%)和“不确定患者能承受多大的压力”(81.1%)。线性回归和回归树分析显示出了负担更重的兄弟姐妹的预测因素。

结论

精神分裂症患者的兄弟姐妹在各个方面都承受着负担,且情况较为特殊。因此,在对他们进行适当的干预之前,必须要先了解他们的特殊需求。

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