Al Dhanhani Ali M, Gignac Monique A M, Beaton Dorcas E, Su Jiandong, Fortin Paul R
Department of Medicine, College of Medicine and Health Science, UAE University, Al Ain, United Arab Emirates, Division of Health Care & Outcomes Research, Toronto Western Research Institute, University Health Network, Institute for Work and Health, Dalla Lana School of Public Health, University of Toronto, Mobility Program Clinical Research Unit, Li Ka Shing Knowledge Institute of St Michael's Hospital, Institute for Health Policy, Management & Evaluation, University of Toronto, Centre for Prognostic Studies in the Rheumatic Diseases, Division of Rheumatology, Department of Medicine, University Health Network, Toronto, Centre de recherche du CHU de Québec, Division de Rhumatologie, Département de Médicine and Département de Médecine, Université Laval, Québec, Canada.
Department of Medicine, College of Medicine and Health Science, UAE University, Al Ain, United Arab Emirates, Division of Health Care & Outcomes Research, Toronto Western Research Institute, University Health Network, Institute for Work and Health, Dalla Lana School of Public Health, University of Toronto, Mobility Program Clinical Research Unit, Li Ka Shing Knowledge Institute of St Michael's Hospital, Institute for Health Policy, Management & Evaluation, University of Toronto, Centre for Prognostic Studies in the Rheumatic Diseases, Division of Rheumatology, Department of Medicine, University Health Network, Toronto, Centre de recherche du CHU de Québec, Division de Rhumatologie, Département de Médicine and Département de Médecine, Université Laval, Québec, Canada Department of Medicine, College of Medicine and Health Science, UAE University, Al Ain, United Arab Emirates, Division of Health Care & Outcomes Research, Toronto Western Research Institute, University Health Network, Institute for Work and Health, Dalla Lana School of Public Health, University of Toronto, Mobility Program Clinical Research Unit, Li Ka Shing Knowledge Institute of St Michael's Hospital, Institute for Health Policy, Management & Evaluation, University of Toronto, Centre for Prognostic Studies in the Rheumatic Diseases, Division of Rheumatology, Department of Medicine, University Health Network, Toronto, Centre de recherche du CHU de Québec, Division de Rhumatologie, Département de Médicine and Département de Médecine, Université Laval, Québec, Canada Department of Medicine, College of Medicine and Health Science, UAE University, Al Ain, United Arab Emirates, Division of Health Care & Outcomes Research, Toronto Western Research Institute, University Health Network, Institute for Work and Health, Dalla Lana School of Public Health, University of Toronto, Mobility Program Clinical Research Unit, Li Ka Shing Knowledge Institute of St Michael's Hospital, Institute for Health Poli
Rheumatology (Oxford). 2014 Nov;53(11):2044-52. doi: 10.1093/rheumatology/keu242. Epub 2014 Jun 10.
The objective of this study was to examine the extent of workplace activity limitations among persons with lupus and to identify factors associated with activity limitations among those employed.
We conducted a cross-sectional study using a mailed survey and clinical data of persons with lupus who attended a large lupus outpatient clinic. Data were collected on demographics, health, work factors and psychosocial measures. The workplace activity limitations scale (WALS) was used to measure difficulty related to different activities at work. Multivariable analysis examined the association of health, work context, psychosocial and demographic variables with workplace activity limitations.
We received 362 responses from 604 (60%) mailed surveys. Among those not employed, 52% reported not working because of lupus. A range of physical and mental tasks were reported as difficult. Each of the physical, cognitive and energy work activities was cited as difficult by more than one-third of participants. Among employed participants, 40% had medium to high WALS difficulty scores. In the multivariable analysis, factors significantly associated with workplace activity limitations were older age, greater disease activity, fatigue, poorer health status measured by the 36-item Short Form Health Survey, lower job control, greater job strain and working more than 40 h/week.
People with lupus experience limitations and difficulty at work. Determinants of workplace activity limitations are mainly those related to workplace and health factors.
本研究的目的是调查狼疮患者工作场所活动受限的程度，并确定就业人群中与活动受限相关的因素。
我们采用邮寄调查问卷和一家大型狼疮门诊就诊的狼疮患者临床数据进行了一项横断面研究。收集了人口统计学、健康状况、工作因素和心理社会指标的数据。工作场所活动受限量表（WALS）用于衡量与工作中不同活动相关的困难程度。多变量分析研究了健康状况、工作环境、心理社会因素和人口统计学变量与工作场所活动受限之间的关联。
我们从604份邮寄调查问卷中收到了362份回复（60%）。在未就业者中，52%报告称因狼疮而未工作。一系列身体和心理任务都被报告有困难。超过三分之一的参与者认为身体、认知和精力方面的工作活动都有困难。在就业参与者中，40%的人WALS困难得分处于中高水平。在多变量分析中，与工作场所活动受限显著相关的因素包括年龄较大、疾病活动度较高、疲劳、通过36项简短健康调查问卷测量的健康状况较差、工作控制较低、工作压力较大以及每周工作超过40小时。
狼疮患者在工作中会遇到限制和困难。工作场所活动受限的决定因素主要与工作场所和健康因素有关。
