Prasanna Kumar K M, Dev N Prabhu, Raman K V, Desai Rajnanda, Prasadini T Geetha, Das A K, Ramoul Soraya
Consultant Endocrinologist, Bangalore Diabetes Hospital, Vasanthnagar, Bangalore, India.
Chairman, Karnataka Health Commission and Vice-Chancellor, Bangalore University, Bangalore, India.
Indian J Endocrinol Metab. 2014 May;18(3):264-73. doi: 10.4103/2230-8210.129714.
While T1DM has been traditionally seen as a minor concern in the larger picture of pediatric ailments, new data reveals that the incidence of T1DM has assumed alarming proportions. It has long been clear that while the disease may be diagnosed at an early age, its impact is not isolated to afflicted children. The direct impact of the disease on the patient is debilitating due to the nature of the disease and lack of proper access to treatment in India. But this impact is further compounded by the utter apathy and often times antipathy, which patients withT1DM have to face. Lack of awareness of the issue in all stakeholders, low access to quality healthcare, patient, physician, and system level barriers to the delivery of optimal diabetes care are some of the factors which hinder successful management of T1DM. The first international consensus meet on diabetes in children was convened with the aim of providing a common platform to all the stakeholders in the management of T1DM, to discuss the academic, administrative and healthcare system related issues. The ultimate aim was to articulate the problems faced by children with diabetes in a way that centralized their position and focused on creating modalities of management sensitive to their needs and aspirations. It was conceptualized to raise a strong voice of advocacy for improving the management of T1DM and ensuring that "No child should die of diabetes". The unique clinical presentations of T1DM coupled with ignorance on the part of the medical community and society in general results in outcomes that are far worse than that seen with T2DM. So there is a need to substantially improve training of HCPs at all levels on this neglected aspect of healthcare.
虽然在小儿疾病的整体范畴中,1型糖尿病传统上一直被视为不太重要的问题,但新数据显示,1型糖尿病的发病率已达到惊人的比例。长期以来一直很清楚的是,虽然这种疾病可能在幼年时被诊断出来,但其影响并不局限于患病儿童。由于该疾病的性质以及在印度难以获得适当的治疗,这种疾病对患者的直接影响是使人衰弱的。但1型糖尿病患者不得不面对的完全冷漠甚至常常是反感,使这种影响进一步加剧。所有利益相关者对该问题缺乏认识、获得优质医疗保健的机会少、患者、医生以及医疗系统层面在提供最佳糖尿病护理方面存在障碍,这些都是阻碍1型糖尿病成功管理的一些因素。首次关于儿童糖尿病的国际共识会议召开,目的是为1型糖尿病管理的所有利益相关者提供一个共同平台,以讨论与学术、行政和医疗系统相关的问题。最终目标是以一种集中体现他们的立场并专注于创建对他们的需求和愿望敏感的管理模式的方式,阐明糖尿病儿童所面临的问题。其构想是发出强烈的倡导声音,以改善1型糖尿病的管理并确保“没有儿童应死于糖尿病”。1型糖尿病独特的临床表现,再加上医学界和整个社会的无知,导致的结果远比2型糖尿病严重。因此,有必要大幅改进各级医疗保健人员在这一被忽视的医疗保健方面的培训。