Suppr超能文献

患有囊性纤维化的儿童和青少年的家庭功能与治疗依从性

Family Functioning and Treatment Adherence in Children and Adolescents with Cystic Fibrosis.

作者信息

Everhart Robin S, Fiese Barbara H, Smyth Joshua M, Borschuk Adrienne, Anbar Ran D

机构信息

Department of Psychology, Virginia Commonwealth University , Richmond, Virginia.

Family Resiliency Center, Department of Human and Community Development, University of Illinois at Urbana-Champaign , Champaign, Illinois.

出版信息

Pediatr Allergy Immunol Pulmonol. 2014 Jun 1;27(2):82-86. doi: 10.1089/ped.2014.0327.

Abstract

Cystic fibrosis (CF) is one of the most challenging pediatric illnesses for families to manage. There is, however, limited research that considers the associations between family functioning and treatment adherence in children and adolescents with CF. Nineteen children with CF (mean age=12.42 years, mean forced expiratory volume in one second (FEV)=90.9% predicted) and their families participated in the study. Caregiver and child participants completed interview-based assessments and were then videotaped during a family mealtime. Mean scores on several domains of family functioning fell in the "unhealthy" range. Better family functioning was found among older children. Better family functioning was also associated with better adherence to antibiotic treatment and worse adherence to enzymes. Findings suggest that family functioning may be an important correlate of treatment adherence in children and adolescents with CF. Future research should replicate these findings in larger samples of children and adolescents with CF.

摘要

囊性纤维化(CF)是家庭最难应对的儿科疾病之一。然而,关于CF儿童和青少年家庭功能与治疗依从性之间关联的研究有限。19名CF儿童(平均年龄 = 12.42岁,一秒用力呼气量(FEV)平均为预测值的90.9%)及其家庭参与了该研究。照顾者和儿童参与者完成了基于访谈的评估,然后在家庭用餐时间进行录像。家庭功能几个领域的平均得分处于“不健康”范围。年龄较大的儿童家庭功能较好。家庭功能较好还与抗生素治疗依从性较好以及酶治疗依从性较差有关。研究结果表明,家庭功能可能是CF儿童和青少年治疗依从性的一个重要相关因素。未来的研究应以更大样本的CF儿童和青少年重复这些发现。

相似文献

1
Family Functioning and Treatment Adherence in Children and Adolescents with Cystic Fibrosis.
Pediatr Allergy Immunol Pulmonol. 2014 Jun 1;27(2):82-86. doi: 10.1089/ped.2014.0327.
3
Family functioning in young children with cystic fibrosis: observations of interactions at mealtime.
J Dev Behav Pediatr. 2004 Oct;25(5):335-46. doi: 10.1097/00004703-200410000-00005.
4
Executive functioning in pediatric cystic fibrosis: A preliminary study and conceptual model.
Pediatr Pulmonol. 2020 Apr;55(4):939-947. doi: 10.1002/ppul.24648. Epub 2020 Jan 17.
5
Caloric intake and eating behavior in infants and toddlers with cystic fibrosis.
Pediatrics. 2002 May;109(5):E75-5. doi: 10.1542/peds.109.5.e75.
6
Observational assessment of family functioning at mealtime in preschool children with cystic fibrosis.
J Pediatr Psychol. 2001 Jun;26(4):215-24. doi: 10.1093/jpepsy/26.4.215.
7
Family functioning at meals relates to adherence in young children with type 1 diabetes.
J Paediatr Child Health. 2009 Dec;45(12):736-41. doi: 10.1111/j.1440-1754.2009.01604.x. Epub 2009 Oct 26.
9
Health-related quality-of-life in children with cystic fibrosis aged 5-years and associations with health outcomes.
J Cyst Fibros. 2020 May;19(3):483-491. doi: 10.1016/j.jcf.2020.02.022. Epub 2020 Mar 9.
10
Effect of disease-related pain on the health-related quality of life of children and adolescents with cystic fibrosis.
Clin J Pain. 2006 Jul-Aug;22(6):532-7. doi: 10.1097/01.ajp.0000210996.45459.76.

引用本文的文献

1
Socioeconomic determinants of respiratory health in patients with cystic fibrosis: implications for treatment strategies.
Expert Rev Respir Med. 2022 Jun;16(6):637-650. doi: 10.1080/17476348.2022.2090928. Epub 2022 Jun 23.
2
Key predictors of the need for a family-focused pediatric epilepsy adherence intervention.
Epilepsia. 2022 Aug;63(8):2120-2129. doi: 10.1111/epi.17302. Epub 2022 Jun 3.
3
The lived experience of adults with cystic fibrosis: what they would tell their younger selves about the gut.
J Hum Nutr Diet. 2020 Apr;33(2):151-158. doi: 10.1111/jhn.12703. Epub 2019 Nov 25.
4
Identifying and Integrating Parent Priorities for Psychosocial Support Services in a Pediatric Cystic Fibrosis Clinic.
J Clin Psychol Med Settings. 2019 Jun;26(2):235-241. doi: 10.1007/s10880-018-9588-1.
5
Risk stratification model to detect early pulmonary disease in infants with cystic fibrosis diagnosed by newborn screening.
Pediatr Pulmonol. 2016 Nov;51(11):1168-1176. doi: 10.1002/ppul.23536. Epub 2016 Aug 24.
7
Respiratory therapy: a problem among children and adolescents with cystic fibrosis.
J Bras Pneumol. 2016 Jan-Feb;42(1):29-34. doi: 10.1590/S1806-37562016000000068.
8
Parental Depression and Pancreatic Enzymes Adherence in Children With Cystic Fibrosis.
Pediatrics. 2016 Feb;137(2):e20152296. doi: 10.1542/peds.2015-2296. Epub 2016 Jan 5.

本文引用的文献

3
Influences on adherence to pediatric asthma treatment: a review of correlates and predictors.
J Dev Behav Pediatr. 2009 Dec;30(6):574-82. doi: 10.1097/DBP.0b013e3181c3c3bb.
4
Associations of psychosocial factors with health outcomes among youth with cystic fibrosis.
Pediatr Pulmonol. 2009 Jan;44(1):46-53. doi: 10.1002/ppul.20925.
5
The relation between family factors and metabolic control: the role of diabetes adherence.
J Pediatr Psychol. 2006 Mar;31(2):174-83. doi: 10.1093/jpepsy/jsj004. Epub 2005 Mar 3.
6
Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way?
J Pediatr Psychol. 2006 Sep;31(8):846-58. doi: 10.1093/jpepsy/jsj096. Epub 2006 Jan 9.
7
Longitudinal research in pediatric psychology: an introduction to the special issue.
J Pediatr Psychol. 2006 Nov-Dec;31(10):995-1001. doi: 10.1093/jpepsy/jsj070. Epub 2005 Sep 8.
10
Family functioning in young children with cystic fibrosis: observations of interactions at mealtime.
J Dev Behav Pediatr. 2004 Oct;25(5):335-46. doi: 10.1097/00004703-200410000-00005.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验