患有囊性纤维化的儿童和青少年的家庭功能与治疗依从性
Family Functioning and Treatment Adherence in Children and Adolescents with Cystic Fibrosis.
作者信息
Everhart Robin S, Fiese Barbara H, Smyth Joshua M, Borschuk Adrienne, Anbar Ran D
机构信息
Department of Psychology, Virginia Commonwealth University , Richmond, Virginia.
Family Resiliency Center, Department of Human and Community Development, University of Illinois at Urbana-Champaign , Champaign, Illinois.
出版信息
Pediatr Allergy Immunol Pulmonol. 2014 Jun 1;27(2):82-86. doi: 10.1089/ped.2014.0327.
Cystic fibrosis (CF) is one of the most challenging pediatric illnesses for families to manage. There is, however, limited research that considers the associations between family functioning and treatment adherence in children and adolescents with CF. Nineteen children with CF (mean age=12.42 years, mean forced expiratory volume in one second (FEV)=90.9% predicted) and their families participated in the study. Caregiver and child participants completed interview-based assessments and were then videotaped during a family mealtime. Mean scores on several domains of family functioning fell in the "unhealthy" range. Better family functioning was found among older children. Better family functioning was also associated with better adherence to antibiotic treatment and worse adherence to enzymes. Findings suggest that family functioning may be an important correlate of treatment adherence in children and adolescents with CF. Future research should replicate these findings in larger samples of children and adolescents with CF.
囊性纤维化（CF）是家庭最难应对的儿科疾病之一。然而，关于CF儿童和青少年家庭功能与治疗依从性之间关联的研究有限。19名CF儿童（平均年龄 = 12.42岁，一秒用力呼气量（FEV）平均为预测值的90.9%）及其家庭参与了该研究。照顾者和儿童参与者完成了基于访谈的评估，然后在家庭用餐时间进行录像。家庭功能几个领域的平均得分处于“不健康”范围。年龄较大的儿童家庭功能较好。家庭功能较好还与抗生素治疗依从性较好以及酶治疗依从性较差有关。研究结果表明，家庭功能可能是CF儿童和青少年治疗依从性的一个重要相关因素。未来的研究应以更大样本的CF儿童和青少年重复这些发现。
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