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对患有囊性纤维化的学龄前儿童用餐时家庭功能的观察性评估。

Observational assessment of family functioning at mealtime in preschool children with cystic fibrosis.

作者信息

Spieth L E, Stark L J, Mitchell M J, Schiller M, Cohen L L, Mulvihill M, Hovell M F

机构信息

Children's Hospital Boston, Harvard Medical School, USA.

出版信息

J Pediatr Psychol. 2001 Jun;26(4):215-24. doi: 10.1093/jpepsy/26.4.215.

DOI:10.1093/jpepsy/26.4.215
PMID:11329481
Abstract

OBJECTIVE

To examine functioning during a dinner meal in families of a child with a chronic illness that requires dietary treatment recommendations, as compared to families of a child without a chronic illness.

METHODS

Ratings of seven dimensions of family functioning on the McMaster Mealtime Family Interaction Coding System (MICS) were obtained on 29 families of children with CF and 29 families of children with no chronic illness, ages 2 to 6 years, during a videotaped dinner meal at home.

RESULTS

Ratings of families with a child with CF were significantly lower than those for families of children without a chronic illness on Overall Family Functioning and five of the six MICS dimensions: Communication, Interpersonal Involvement, Affect Management, Behavior Control, and Role Allocation and approached significance on the Task Accomplishment dimension. The ratings of families of a child with CF were in the "clinically significant" range on all subcales, including Task ACCOMPLISHMENT.

CONCLUSIONS

This study suggests that family functioning at mealtimes may be different in families of children with CF in which explicit dietary guidelines exist than in families of children with no illness or dietary guidelines. These results are discussed in terms of global family functioning and treatment approaches to dietary treatment recommendations.

摘要

目的

与没有慢性病孩子的家庭相比,研究患有需要饮食治疗建议的慢性病孩子的家庭在用餐时的功能状况。

方法

在29个患有囊性纤维化(CF)孩子的家庭和29个没有慢性病孩子的家庭中,对年龄在2至6岁的孩子,通过在家中录制的晚餐用餐过程,依据麦克马斯特用餐时家庭互动编码系统(MICS)对家庭功能的七个维度进行评分。

结果

患有CF孩子的家庭在整体家庭功能以及MICS六个维度中的五个维度上的评分显著低于没有慢性病孩子的家庭,这五个维度分别是:沟通、人际参与、情感管理、行为控制和角色分配,在任务完成维度上接近显著水平。患有CF孩子的家庭在所有子量表上的评分都处于“临床显著”范围,包括任务完成。

结论

本研究表明,与没有疾病或饮食指导的孩子家庭相比,存在明确饮食指导的CF孩子家庭在用餐时的家庭功能可能有所不同。从整体家庭功能和饮食治疗建议的治疗方法方面对这些结果进行了讨论。

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