在颈部肌张力障碍患者的生活质量中，身体、社会和情感方面受到的影响最大。

The physical, social and emotional aspects are the most affected in the quality of life of the patients with cervical dystonia.

作者信息

Werle Roberta Weber, Takeda Sibele Yoko Mattozo, Zonta Marise Bueno, Guimarães Ana Tereza Bittencourt, Teive Hélio Afonso Ghizoni

机构信息

Setor de Distúrbios do Movimento, Serviço de Neurologia, Departamento de Medicina Interna, Hospital de Clínicas, Universidade Federal do Paraná, Curitiba, PR, Brazil.

Universidade Federal do Paraná, Curitiba, PR, Brazil.

出版信息

Arq Neuropsiquiatr. 2014 Jun;72(6):405-10. doi: 10.1590/0004-282x20140044.

DOI:10.1590/0004-282x20140044

PMID:24964104

Abstract

OBJECTIVE

Describe the functional, clinical and quality of life (QoL) profiles in patients with cervical dystonia (CD) with residual effect or without effect of botulinum toxin (BTX), as well as verify the existence of correlation between the level of motor impairment, pain and QoL.

METHOD

Seventy patients were assessed through the Craniocervical dystonia questionnaire-24 (CDQ-24) and the Toronto Western Spasmodic Torticollis Rating Scale (TWSTRS).

RESULTS

The greater the disability, pain and severity of dystonia, the worse the QoL (p<0.0001). Greater severity relates to greater disability (p<0.0001). Pain was present in 84% of the sample, being source of disability in 41%. The most frequent complaints were: difficulty in keeping up with professional and personal demands (74.3%), feeling uneasy in public (72.9%), hindered by pain (68.6%), depressed, annoyed or bitter (47.1%), lonely or isolated (32.9%).

CONCLUSION

The physical, social and emotional aspects are the most affected in the QoL of these patients.

摘要

目的

描述肉毒杆菌毒素（BTX）治疗有残留效应或无效应的颈部肌张力障碍（CD）患者的功能、临床和生活质量（QoL）概况，并验证运动障碍程度、疼痛与生活质量之间是否存在相关性。

方法

通过颅颈肌张力障碍问卷-24（CDQ-24）和多伦多西部痉挛性斜颈评定量表（TWSTRS）对70例患者进行评估。

结果

肌张力障碍的残疾程度、疼痛程度和严重程度越高，生活质量越差（p<0.0001）。严重程度越高与残疾程度越高相关（p<0.0001）。84%的样本存在疼痛，其中41%是残疾的根源。最常见的抱怨是：难以满足职业和个人需求（74.3%）、在公共场合感到不安（72.9%）、受到疼痛困扰（68.6%）、沮丧、烦恼或痛苦（47.1%）、孤独或孤立（32.9%）。