Nimbalkar Somashekhar, Raithatha Shyamsundar, Shah Rutvij, Panchal Dhara Antani
Department of Pediatrics, Pramukhswami Medical College, Karamsad, Anand, Gujarat 388325, India ; Central Research Services, Charutar Arogya Mandal, HM Patel Academic Center, Karamsad, Anand, Gujarat 388325, India.
Department of Community Medicine, Pramukhswami Medical College, Karamsad, Anand, Gujarat 388325, India.
ISRN Family Med. 2014 Feb 20;2014:769619. doi: 10.1155/2014/769619. eCollection 2014.
Objective. To explore the psychosocial problems faced by the parents of children with cerebral palsy (CP) in rural and urban settings. Design. Qualitative research design using focus group discussions (FGDs) was used for the study. Setting. Two FGDs comprising one at a rural tertiary level care hospital and the other at an urban tertiary level care hospital were conducted. Participants. A total of thirteen parents participated in the two FGDs. Main Outcome Measured. Psychosocial problems experienced by the parents of children suffering from CP were measured. Results. The problems experienced by the mothers were associated with common themes such as disturbed social relationships, health problems, financial problems, moments of happiness, worries about future of the child, need for more support services, and lack of adequate number of trained physiotherapists. All the parents had children with problems since birth and most had approached various health care providers for a cure for their child. Conclusions. A wide range of psychosocial problems are experienced by the parents of children with CP. Studies like this can provide valuable information for designing a family centered care programme for children with CP.
目的。探讨城乡环境中脑瘫（CP）患儿家长所面临的心理社会问题。设计。本研究采用焦点小组讨论（FGD）的定性研究设计。地点。在一家农村三级护理医院和一家城市三级护理医院分别进行了两次焦点小组讨论。参与者。共有13位家长参与了这两次焦点小组讨论。主要测量指标。测量CP患儿家长所经历的心理社会问题。结果。母亲们所经历的问题与一些共同主题相关，如社会关系紊乱、健康问题、经济问题、幸福时刻、对孩子未来的担忧、对更多支持服务的需求以及缺乏足够数量的训练有素的物理治疗师。所有家长的孩子自出生就有问题，大多数家长曾寻求各种医疗服务提供者为孩子治病。结论。CP患儿家长经历了广泛的心理社会问题。此类研究可为设计以家庭为中心的CP患儿护理项目提供有价值的信息。
