Macartney Gail, Stacey Dawn, Harrison Margaret B, VanDenKerkhof Elizabeth
Children's Hospital of Eastern Ontario, Ottawa, Canada.
Patient Decision Aids Research Group in the Ottawa Hospital Research Institute, University of Ottawa in Canada.
Oncol Nurs Forum. 2014 Jul 1;41(4):390-8. doi: 10.1188/14.ONF.390-398.
PURPOSE/OBJECTIVES: To explore the symptom experience, coping strategies, and children's descriptions of their quality of life (QOL) after treatment for a brain tumor.
An interpretive descriptive qualitative study.
A pediatric hospital setting in Ontario, Canada.
12 children aged 9-18 years.
Content analysis of semistructured interviews was guided by interpretive description methodology.
Children described symptoms including feeling tired, pain, headaches, emotional problems, difficulty thinking and remembering, problems with sleep, physical problems, and weight changes. Symptoms interfered with physical activity, keeping up with school, maintaining appearances, and communication. Coping strategies included reconditioning, taking breaks, taking medication, challenging themselves, volunteering, maintaining friendships, laughing, and using aids.
Survivors experienced multiple symptoms that had an effect on their life, but overall, they described good QOL.
Caregivers need to understand the complexity of their patient's symptom experience and its impact on his or her daily life. Coping strategies can be identified to help mitigate potentially negative QOL outcomes.
目的/目标：探讨脑肿瘤治疗后儿童的症状体验、应对策略及其对生活质量（QOL）的描述。
一项解释性描述性定性研究。
加拿大安大略省的一家儿科医院。
12名9至18岁的儿童。
采用解释性描述方法指导对半结构化访谈进行内容分析。
儿童描述的症状包括感到疲倦、疼痛、头痛、情绪问题、思维和记忆困难、睡眠问题、身体问题以及体重变化。这些症状妨碍了体育活动、学业、保持外表形象和交流。应对策略包括重新调整状态、休息、服药、挑战自我、做志愿者、维持友谊、欢笑以及使用辅助工具。
幸存者经历了多种影响其生活的症状，但总体而言，他们对生活质量的描述良好。
护理人员需要了解患者症状体验的复杂性及其对日常生活的影响。可以确定应对策略以帮助减轻生活质量潜在的负面结果。
