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驾驭急流:与自闭症或残疾共处——对一项针对残疾儿童家长的育儿支持干预措施的评估

Riding the rapids: living with autism or disability--an evaluation of a parenting support intervention for parents of disabled children.

作者信息

Stuttard Lucy, Beresford Bryony, Clarke Susan, Beecham Jennifer, Todd Samantha, Bromley Jo

机构信息

Social Policy Research Unit, University of York, York, UK.

Social Policy Research Unit, University of York, York, UK.

出版信息

Res Dev Disabil. 2014 Oct;35(10):2371-83. doi: 10.1016/j.ridd.2014.05.021. Epub 2014 Jun 26.

DOI:10.1016/j.ridd.2014.05.021
PMID:24973545
Abstract

Evidence on the effectiveness of interventions to support parents of disabled children to manage their child's behaviour problems is limited. The aim of this study was to evaluate a group-delivered intervention (Riding the Rapids) which was specifically developed for parents of a child with a disability or autistic spectrum condition. This programme has been routinely delivered by a community-based mental health team across an urban, multi-ethnic locality for a number of years. A non-randomised controlled study design comprising an intervention group (n=48) and comparator (no intervention) group (n=28) was used to evaluate the effects of the intervention on child behaviour (Eyberg Child Behaviour Inventory; parent-set goals) and parenting efficacy and satisfaction (Parents Sense of Competence Scale) at post-intervention and six-month follow-up. Data on costs to the service provider of delivering the intervention were also collected. Receipt of the intervention was associated with significant reductions in parent-reported behaviour problems and significant improvements in parenting efficacy and satisfaction. At six-month follow-up, progress towards achieving parent-set child behaviour goals and parenting satisfaction had been maintained. Post hoc analysis suggests parents who do not have English as a first language may not benefit as much as other parents from this intervention. Findings suggest this is a promising intervention for parents of a child with a disability that is likely to be less resource intensive to service providers than individually delivered interventions. Limitations and implications for future research are discussed.

摘要

关于支持残疾儿童家长应对其孩子行为问题的干预措施有效性的证据有限。本研究的目的是评估一项专门为残疾或自闭症谱系障碍儿童的家长开发的团体干预措施(“驾驭急流”)。多年来,一个社区心理健康团队在一个城市多民族地区定期开展了这个项目。本研究采用非随机对照研究设计,分为干预组(n = 48)和对照组(无干预,n = 28),以评估干预措施对干预后及六个月随访时儿童行为(艾伯格儿童行为量表;家长设定的目标)、育儿效能和满意度(家长能力感量表)的影响。同时还收集了服务提供者实施干预措施的成本数据。接受干预与家长报告的行为问题显著减少以及育儿效能和满意度显著提高相关。在六个月的随访中,在实现家长设定的儿童行为目标和育儿满意度方面的进展得以维持。事后分析表明,第一语言不是英语的家长可能不如其他家长从这种干预中获益多。研究结果表明,对于残疾儿童的家长来说,这是一项有前景的干预措施,对服务提供者而言,其资源密集程度可能低于个体干预措施。本文讨论了研究的局限性以及对未来研究的启示。

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