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支持智障儿童父母的计划:范围综述方案。

Support programmes for parents of children with intellectual disabilities: a scoping review protocol.

机构信息

Centre for Interdisciplinary Studies of Children, Family and Society, University of the Western Cape Faculty of Community and Health Sciences, Cape Town, Western Cape, South Africa

Department of Occupational Therapy, University of the Western Cape Faculty of Community and Health Sciences, Cape Town, South Africa.

出版信息

BMJ Open. 2022 May 10;12(5):e049965. doi: 10.1136/bmjopen-2021-049965.

DOI:10.1136/bmjopen-2021-049965
PMID:35537789
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9092129/
Abstract

INTRODUCTION

Evidence shows that parents of children with intellectual disabilities experience high levels of stress, emotional challenges and higher levels of depression. Despite these challenges, support for parents has tended to be peripheral in healthcare services of children. There is a lack of research attention given to support programmes for parents of children with intellectual disabilities despite the importance of parenting for the optimal development of children with intellectual disabilities.

METHODS AND ANALYSIS

This review will follow the Joanna Briggs Institute scoping review methods manual. The search for relevant studies will be in Medline (EbscoHost), PsychARTICLES, PubMed, CINHAL, Academic Search Complete and SAePublications. Reference mining of full review studies will be conducted. A three-step search strategy will be used, including the use of information management software to manage the search results and to remove duplications. An independent reviewer will extract data using a data extraction tool. Furthermore, another reviewer will screen the included articles in conjunction with the results of the scoping review. The data extracted will be presented in a tabular format with a narrative summary related to the key findings.

ETHICS AND DISSEMINATION

This scoping review has received ethical approval (BM20/4/26). A summary of the findings of the study will be published in a peer-reviewed journal. This scoping review will contribute to a better understanding of the support programmes available to parents of children with intellectual disabilities. This could be the first step in highlighting the gaps and future directions for the development and implementation of support programmes for parents of children with intellectual disabilities.

REGISTRATION DETAILS

Marais JE, Wegner L, Mthembu T. Support programs for parents of children with intellectual disabilities: a scoping review [Internet].OSF; 2021. Available from:https://osf.io/en6cs/.

摘要

介绍

有证据表明,智障儿童的父母会经历高水平的压力、情绪挑战和更高水平的抑郁。尽管面临这些挑战,但在儿童保健服务中,对父母的支持往往处于次要地位。尽管父母对智障儿童的最佳发展至关重要,但针对智障儿童父母的支持计划却缺乏研究关注。

方法和分析

本综述将遵循乔安娜·布里格斯研究所的范围综述方法手册。将在 Medline(EbscoHost)、PsychARTICLES、PubMed、CINHAL、Academic Search Complete 和 SAePublications 中搜索相关研究。将对综述研究进行参考文献挖掘。将使用三步搜索策略,包括使用信息管理软件来管理搜索结果和去除重复项。一位独立的综述员将使用数据提取工具提取数据。此外,另一位综述员将结合范围综述的结果筛选纳入的文章。提取的数据将以表格形式呈现,并附有与关键发现相关的叙述性摘要。

伦理和传播

这项范围综述已获得伦理批准(BM20/4/26)。研究结果的摘要将发表在同行评议的期刊上。这项范围综述将有助于更好地了解智障儿童父母可获得的支持计划。这可能是突出智障儿童父母支持计划的差距和未来发展方向的第一步。

注册详情

Marais JE, Wegner L, Mthembu T. 智障儿童父母的支持计划:范围综述[互联网].OSF; 2021. 可从以下网址获得:https://osf.io/en6cs/。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2fde/9092129/d18fd1b24b9e/bmjopen-2021-049965f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2fde/9092129/d18fd1b24b9e/bmjopen-2021-049965f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2fde/9092129/d18fd1b24b9e/bmjopen-2021-049965f01.jpg

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本文引用的文献

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'I don't feel like I'm in this on my own': Peer support for mothers of children with intellectual disability and challenging behaviour.“我感觉自己不是独自面对这一切”:为智障及行为问题儿童的母亲提供同伴支持。
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Stigma experienced by families of individuals with intellectual disabilities and autism: A systematic review.
智力残疾和自闭症患者家庭所经历的污名:系统评价。
Res Dev Disabil. 2019 Jun;89:10-21. doi: 10.1016/j.ridd.2019.03.001. Epub 2019 Mar 12.
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Child and adolescent mental health policy in South Africa: history, current policy development and implementation, and policy analysis.南非儿童和青少年心理健康政策:历史、当前政策制定与实施以及政策分析
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J Pediatr. 2015 Oct;167(4):795-6. doi: 10.1016/j.jpeds.2015.07.039. Epub 2015 Aug 12.
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Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015 statement.系统评价与Meta分析方案的首选报告项目(PRISMA-P)2015声明。
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Riding the rapids: living with autism or disability--an evaluation of a parenting support intervention for parents of disabled children.驾驭急流:与自闭症或残疾共处——对一项针对残疾儿童家长的育儿支持干预措施的评估
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