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偏头痛教育手册与患者感知的满意度。

Migraine education brochures and patient-perceived satisfaction.

作者信息

Medrano Martínez V, Callejo-Domínguez J M, Beltrán-Lasco I, Pérez-Carmona N, Abellán-Miralles I, González-Caballero G, Más-Sesé G, López-Hernández N, Pérez-Sempere A, Moltó-Jordá J M

机构信息

Sección de Neurología, Hospital General Universitario Virgen de la Salud de Elda, Elda, España.

Sección de Neurología, Hospital Vega Baja de Orihuela, Orihuela, España.

出版信息

Neurologia. 2015 Oct;30(8):472-8. doi: 10.1016/j.nrl.2014.04.010. Epub 2014 Jun 27.

DOI:10.1016/j.nrl.2014.04.010
PMID:24975347
Abstract

INTRODUCTION

Brochures are commonly used as educational tools in daily neurological practice. They are provided to increase the general population's knowledge of a specific disease and also to combat sources of erroneous information. Surveys are the most commonly used method of ascertaining user satisfaction with services received.

OBJECTIVES

This study will assess patient-perceived satisfaction and provide feedback to measure the comprehensibility and overall utility of an educational brochure on migraine.

MATERIAL AND METHODS

Open prospective multicentre study of a group of patients diagnosed with migraine in neurology clinics in Alicante province. During the initial visit, each patient received a migraine brochure prepared by the Valencian Society of Neurology's study group for headaches (CEFALIC). During a follow-up visit, they were then asked to fill out a personal survey on the overall quality of the information in the brochure.

RESULTS

We included a total of 257 patients diagnosed with migraine (83% episodic migraine; 17% chronic migraine); mean age was 37.6 years. Two hundred seven patients confirmed having read the brochure (80.5%); 50 patients (19.5%) either forgot to read it or had no interest in doing so. The brochure seemed interesting and easy to understand according to 90% of the patients. Seventy-six per cent of the respondents stated that reading the brochure increased their overall knowledge of migraine, while 50% of the patients found the brochure useful for improving migraine control.

CONCLUSIONS

Patients found the migraine educational brochure to be comprehensible, a means of increasing overall knowledge of the disease, and useful for increasing control over migraines. Evaluations of the educational brochures that we provide to our patients with migraine should be studied to discover the causes of dissatisfaction, determine the level of quality of service, and investigate potential areas for improvement.

摘要

引言

手册在日常神经科实践中常被用作教育工具。提供手册是为了增加普通民众对特定疾病的了解,同时抵制错误信息来源。调查是确定用户对所接受服务满意度最常用的方法。

目的

本研究将评估患者感知的满意度,并提供反馈以衡量关于偏头痛的教育手册的可理解性和总体实用性。

材料与方法

对阿利坎特省神经科诊所中一组被诊断为偏头痛的患者进行开放性前瞻性多中心研究。在初次就诊时,每位患者收到一份由巴伦西亚神经学会头痛研究小组(CEFALIC)编写的偏头痛手册。在随访就诊时,要求他们填写一份关于手册中信息总体质量的个人调查问卷。

结果

我们共纳入了257例被诊断为偏头痛的患者(83%为发作性偏头痛;17%为慢性偏头痛);平均年龄为37.6岁。207例患者确认阅读了手册(80.5%);50例患者(19.5%)要么忘记阅读,要么对此不感兴趣。90%的患者认为手册有趣且易于理解。76%的受访者表示阅读手册增加了他们对偏头痛的总体了解,而50%的患者发现手册有助于改善偏头痛的控制。

结论

患者认为偏头痛教育手册易于理解,是增加对该疾病总体了解的一种方式,并且有助于加强对偏头痛的控制。应该研究我们提供给偏头痛患者的教育手册的评估情况,以发现不满意的原因,确定服务质量水平,并调查潜在的改进领域。

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