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北领地东阿纳姆地原住民妇女外阴癌的诊断与治疗:生物伦理思考

Diagnosis and treatment for vulvar cancer for indigenous women from East Arnhem Land, Northern Territory: bioethical reflections.

作者信息

McGrath Pam, Rawson Nicole, Adidi Leonora

机构信息

Centre for Community Science Population & Social Health Program Griffith Health Institute, LO5, Level 1 Logan Campus Griffith University, Meadowbrook Qld 4131, Queensland Australia, PO Box 1307, Kenmore, Qld 4069, Australia,

出版信息

J Bioeth Inq. 2015 Jun;12(2):343-52. doi: 10.1007/s11673-014-9549-9. Epub 2014 Jul 5.

DOI:10.1007/s11673-014-9549-9
PMID:24996629
Abstract

This paper explores the bioethical issues associated with the diagnosis and treatment of vulvar cancer for Indigenous women in East Arnhem Land, Northern Territory, Australia. Based on a qualitative study of a vulvar cancer cluster of Indigenous women, the article highlights four main topics of bioethical concern drawn from the findings: informed consent, removal of body parts, pain management, and issues at the interface of Indigenous and Western health care. The article seeks to make a contribution towards Indigenous health and bioethics and bring to light areas of further research.

摘要

本文探讨了与澳大利亚北领地东阿纳姆地的原住民女性外阴癌诊断和治疗相关的生物伦理问题。基于对一组原住民女性外阴癌患者的定性研究,本文从研究结果中突出了生物伦理方面四个主要关注主题:知情同意、身体部位切除、疼痛管理以及原住民与西方医疗保健交汇点的问题。本文旨在为原住民健康和生物伦理做出贡献,并揭示有待进一步研究的领域。

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Diagnosis and treatment for vulvar cancer for indigenous women from East Arnhem Land, Northern Territory: bioethical reflections.北领地东阿纳姆地原住民妇女外阴癌的诊断与治疗:生物伦理思考
J Bioeth Inq. 2015 Jun;12(2):343-52. doi: 10.1007/s11673-014-9549-9. Epub 2014 Jul 5.
2
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本文引用的文献

1
The experience of relocation for specialist treatment for Indigenous women diagnosed with vulvar cancer in East Arnhem Land.东阿伦特兰岛被诊断患有外阴癌的原住民妇女因接受专科治疗而搬迁的经历。
J Psychosoc Oncol. 2013;31(5):540-55. doi: 10.1080/07347332.2013.822051.
2
Key factors impacting on diagnosis and treatment for vulvar cancer for Indigenous women: findings from Australia.影响澳大利亚原住民女性外阴癌诊断和治疗的关键因素。
Support Care Cancer. 2013 Oct;21(10):2769-75. doi: 10.1007/s00520-013-1859-7. Epub 2013 May 30.
3
Radiation in vulvar cancer.
对西医对澳大利亚原住民和托雷斯海峡岛民疼痛体验、表达、评估及管理的理解的系统评价。
Pain Rep. 2019 Dec 6;4(6):e764. doi: 10.1097/PR9.0000000000000764. eCollection 2019 Nov-Dec.
4
"Can a Company be Bitchy?" Corporate (and Political and Scientific) Social Responsibility.“公司会尖酸刻薄吗?”企业(以及政治和科学领域)的社会责任。
J Bioeth Inq. 2015 Jun;12(2):159-69. doi: 10.1007/s11673-015-9640-x. Epub 2015 May 28.
外阴癌放射治疗。
Curr Opin Obstet Gynecol. 2012 Feb;24(1):24-30. doi: 10.1097/GCO.0b013e32834d12d5.
4
Clinical management of primary vulvar cancer.原发性外阴癌的临床处理。
Eur J Cancer. 2011 Oct;47(15):2315-21. doi: 10.1016/j.ejca.2011.06.007. Epub 2011 Jul 4.
5
Innovation in qualitative interviews: "Sharing Circles" in a First Nations community.定性访谈中的创新:第一民族社区的“分享圈”。
Inj Prev. 2009 Oct;15(5):334-40. doi: 10.1136/ip.2008.021261.
6
Vulvar cancer in young women: demographic features and outcome evaluation.年轻女性外阴癌:人口统计学特征与结局评估
Am J Obstet Gynecol. 2009 Jun;200(6):645.e1-5. doi: 10.1016/j.ajog.2009.01.014. Epub 2009 Mar 16.
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Vulvar cancer in the wake of increasing incidence.随着发病率上升的外阴癌。
Nurse Pract. 2009 Feb;34(2):45-50. doi: 10.1097/01.NPR.0000345276.74407.bf.
8
A cluster of vulvar cancer and vulvar intraepithelial neoplasia in young Australian indigenous women.澳大利亚年轻土著女性中的一组外阴癌和外阴上皮内瘤变
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