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Implementing Optimal Care Pathways for Aboriginal and Torres Strait Islander People With Cancer: A Survey of Rural Health Professionals' Self-Rated Learning Needs.为癌症原住民和托雷斯海峡岛民实施最佳护理路径:农村卫生专业人员自我评估学习需求调查
Int J Integr Care. 2022 Mar 30;22(1):27. doi: 10.5334/ijic.6028. eCollection 2022 Jan-Mar.
2
Cancer Incidence, Mortality, Years of Life Lost, Years Lived With Disability, and Disability-Adjusted Life Years for 29 Cancer Groups From 2010 to 2019: A Systematic Analysis for the Global Burden of Disease Study 2019.2010 年至 2019 年 29 种癌症的发病率、死亡率、生命损失年数、失能生存年数和伤残调整生命年:2019 年全球疾病负担研究的系统分析。
JAMA Oncol. 2022 Mar 1;8(3):420-444. doi: 10.1001/jamaoncol.2021.6987.
3
Aboriginal and Torres Strait Islander patients' cancer care pathways in Queensland: Insights from health professionals.昆士兰原住民及托雷斯海峡岛民患者的癌症护理路径:来自医疗专业人员的见解
Health Promot J Austr. 2022 Jul;33(3):701-710. doi: 10.1002/hpja.556. Epub 2021 Nov 18.
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"We Have to Be Strong Ourselves": Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer.“我们必须坚强起来”:探索照顾癌症的澳裔和托雷斯海峡岛民的非正规照护者的支持需求。
Int J Environ Res Public Health. 2021 Jul 7;18(14):7281. doi: 10.3390/ijerph18147281.
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"The support has been brilliant": experiences of Aboriginal and Torres Strait Islander patients attending two high performing cancer services.“支持非常出色”:原住民和托雷斯海峡岛民患者在两家高效癌症服务机构就诊的经历
BMC Health Serv Res. 2021 May 24;21(1):493. doi: 10.1186/s12913-021-06535-9.
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Measuring health care experiences that matter to Indigenous people in Australia with cancer: identifying critical gaps in existing tools.测量澳大利亚癌症患者的重要医疗体验:发现现有工具的关键差距。
Int J Equity Health. 2021 Apr 12;20(1):100. doi: 10.1186/s12939-021-01433-2.
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Accessibility of cancer treatment services for Indigenous Australians in the Northern Territory: perspectives of patients and care providers.澳大利亚北部地区原住民获得癌症治疗服务的机会:患者和医护人员的观点。
BMC Health Serv Res. 2021 Jan 28;21(1):95. doi: 10.1186/s12913-021-06066-3.
8
Seldom heard voices: a meta-narrative systematic review of Aboriginal and Torres Strait Islander peoples healthcare experiences.少闻其声:原住民和托雷斯海峡岛民医疗保健体验的元叙事系统评价。
Int J Equity Health. 2020 Dec 14;19(1):222. doi: 10.1186/s12939-020-01334-w.
9
The utilization of allied and community health services by cancer patients living in regional and remote geographical areas in Australia.澳大利亚地区和偏远地区癌症患者对联合社区卫生服务的利用。
Support Care Cancer. 2021 Jun;29(6):3209-3217. doi: 10.1007/s00520-020-05839-6. Epub 2020 Oct 22.
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"We're very much part of the team here":  A culture of respect for Indigenous health workforce transforms Indigenous health care.“我们在这里是团队的一部分”:尊重原住民卫生工作者的文化改变了原住民的医疗保健。
PLoS One. 2020 Sep 22;15(9):e0239207. doi: 10.1371/journal.pone.0239207. eCollection 2020.

澳大利亚原住民的癌症护理体验:叙事文献综述。

Indigenous Australians' Experiences of Cancer Care: A Narrative Literature Review.

机构信息

Poche Centre for Indigenous Health, The University of Queensland, Brisbane, QLD 4072, Australia.

School of Public Health, University of Queensland, Brisbane, QLD 4072, Australia.

出版信息

Int J Environ Res Public Health. 2022 Dec 16;19(24):16947. doi: 10.3390/ijerph192416947.

DOI:10.3390/ijerph192416947
PMID:36554828
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9779788/
Abstract

To provide the latest evidence for future research and practice, this study critically reviewed Indigenous peoples' cancer care experiences in the Australian healthcare system from the patient's point of view. After searching PubMed, CINAHL and Scopus databases, twenty-three qualitative studies were included in this review. The inductive approach was used for analysing qualitative data on cancer care experience in primary, tertiary and transitional care between systems. Three main themes were found in healthcare services from Indigenous cancer care experiences: communication, cultural safety, and access to services. Communication was an important theme for all healthcare systems, including language and literacy, understanding of cancer care pathways and hospital environment, and lack of information. Cultural safety was related to trust in the system, privacy, and racism. Access to health services was the main concern in transitional care between healthcare systems. While some challenges will need long-term and collective efforts, such as institutional racism as a downstream effect of colonisation, cultural training for healthcare providers and increasing the volume of the Indigenous workforce, such as Indigenous Liaison Officers or Indigenous Care Coordinators, could effectively address this inequity issue for Indigenous people with cancer in Australia in a timely manner.

摘要

为了提供未来研究和实践的最新证据,本研究从患者的角度批判性地回顾了澳大利亚医疗保健系统中土著人民的癌症护理体验。在搜索 PubMed、CINAHL 和 Scopus 数据库后,本综述纳入了 23 项定性研究。采用归纳法对原发性、三级和系统间过渡护理中癌症护理体验的定性数据进行分析。从土著癌症护理体验中发现医疗保健服务有三个主要主题:沟通、文化安全和服务获取。沟通是所有医疗保健系统的一个重要主题,包括语言和读写能力、对癌症护理途径和医院环境的理解以及信息缺乏。文化安全与对系统的信任、隐私和种族主义有关。在医疗保健系统之间的过渡护理中,获得医疗服务是主要关注点。虽然一些挑战需要长期和集体的努力,例如作为殖民化的下游效应的体制种族主义、对医疗保健提供者的文化培训以及增加土著劳动力的数量,例如土著联络官或土著护理协调员,但可以有效地解决澳大利亚癌症土著人民的这一不平等问题。