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希望的模式:在一项慢性疼痛补充和替代医学临床试验背景下理解希望与期望

Modes of hoping: understanding hope and expectation in the context of a clinical trial of complementary and alternative medicine for chronic pain.

作者信息

Eaves Emery R, Ritenbaugh Cheryl, Nichter Mark, Hopkins Allison L, Sherman Karen J

机构信息

Department of Family and Community Medicine, University of Arizona, Tucson, AZ; School of Anthropology, University of Arizona, Tucson, AZ.

Department of Family and Community Medicine, University of Arizona, Tucson, AZ; School of Anthropology, University of Arizona, Tucson, AZ.

出版信息

Explore (NY). 2014 Jul-Aug;10(4):225-32. doi: 10.1016/j.explore.2014.04.004. Epub 2014 Apr 19.

Abstract

This article explores the role of hope in participants' assessments of their expectations, experiences and treatment outcomes. Data analysis focused on semi-structured, open-ended interviews with 44 participants, interviewed 3-5 times each over the course of a study evaluating Traditional Chinese Medicine (TCM) for temporomandibular disorders (TMD), a form of chronic orofacial pain. Transcripts were coded and analyzed using qualitative and ethnographic methods. A "Modes of Hoping" (Webb, 2007)(1) framework informed our analysis. Five modes of hoping emerged from participant narratives: Realistic Hope, Wishful Hope, Utopian Hope, Technoscience Hope, and Transcendent Hope. Using this framework, hope is demonstrated as exerting a profound influence over how participants assess and report their expectations. This suggests that researchers interested in measuring expectations and understanding their role in treatment outcomes should consider hope as exercising a multi-faceted and dynamic influence on participants' reporting of expectations and their experience and evaluation of treatment.

摘要

本文探讨了希望在参与者对其期望、经历和治疗结果的评估中所起的作用。数据分析聚焦于对44名参与者进行的半结构化、开放式访谈,在一项评估中医治疗颞下颌关节紊乱症(TMD,一种慢性口面部疼痛)的研究过程中,每位参与者接受了3至5次访谈。使用定性和人种学方法对访谈记录进行编码和分析。一个“希望模式”(韦伯,2007年)(1)框架为我们的分析提供了指导。从参与者的叙述中出现了五种希望模式:现实希望、一厢情愿的希望、乌托邦希望、技术科学希望和超然希望。利用这个框架,研究表明希望对参与者如何评估和报告他们的期望产生了深远影响。这表明,对测量期望并理解其在治疗结果中的作用感兴趣的研究人员应考虑到希望对参与者期望的报告以及他们对治疗的体验和评估具有多方面的动态影响。

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