Nøst Torunn Hatlen, Steinsbekk Aslak, Riseth Liv, Bratås Ola, Grønning Kjersti
Department of Public Health and Nursing, Norwegian University of Science and Technology, Postbox 8905, 7491, Trondheim, Norway.
Centre for Health Promotion Research, Norwegian University of Science and Technology, Trondheim, Norway.
BMC Health Serv Res. 2017 Nov 10;17(1):712. doi: 10.1186/s12913-017-2668-3.
People with chronic pain use a range of healthcare services, but they also report a high degree of dissatisfaction with treatments. One reason for dissatisfaction might be participants' expectations towards treatments. The aim of this study was to explore expectations of people with chronic pain towards participation in easily accessible pain management interventions delivered in public primary care.
A qualitative study using semi-structured individual face-to-face interviews with 21 informants. The informants were recruited among participants enrolled in a randomised controlled trial on the effect of an easily accessible self-management course for people with chronic pain. The data were analysed thematically using Systematic Text Condensation.
Having experienced pain for a long time, there was no specific expectation of a cure or a significant alleviation of the pain. The informants' expectations mainly concerned a hope that participation could lead to a better everyday life. The informants said that hope was important as it motivated them to keep going and continue self-care activities. The hope acted as a driving force towards trying new interventions and maintaining motivation to do activities they experienced as beneficial. Both concrete aspects of the current intervention and an understanding of what interventions in general could offer contributed to the informants hope. The expectations centred about the interventions being something new, as they had not previously tried this service, an opportunity to gain and reinforce skills, to help them continue to grow as a person, to meet others in similar situations, and to access professional support in an easy manner. Participating in interventions provided by healthcare services was seen by some as an act of self-care, where they did something active to manage their health.
Expectations towards the interventions were related to a hope for participation leading to a better everyday life. The role of hope for peoples' motivation to self-care implies that service providers should be aware of and help to maintain hope for a better everyday life. The importance of social support as part of self-care should be acknowledged when developing interventions targeting chronic pain.
ClinicalTrials.gov: NCT02531282 . Registered on August 21 2015.
慢性疼痛患者会使用一系列医疗服务，但他们也表示对治疗高度不满。不满的一个原因可能是参与者对治疗的期望。本研究的目的是探讨慢性疼痛患者对参与公共初级保健中易于获得的疼痛管理干预措施的期望。
一项定性研究，采用半结构化的个人面对面访谈21名受访者。受访者是从一项关于易于获得的慢性疼痛自我管理课程效果的随机对照试验的参与者中招募的。使用系统文本浓缩法对数据进行主题分析。
由于长期经历疼痛，受访者对治愈或显著减轻疼痛没有具体期望。受访者的期望主要是希望参与能带来更好的日常生活。受访者表示，希望很重要，因为它激励他们坚持下去并继续自我护理活动。这种希望成为尝试新干预措施和保持参与有益活动动力的驱动力。当前干预措施的具体方面以及对一般干预措施所能提供内容的理解都促成了受访者的希望。期望集中在干预措施是新的，因为他们以前没有尝试过这项服务，是获得和强化技能的机会，帮助他们不断成长，结识其他有类似情况的人，并以轻松的方式获得专业支持。一些人认为参与医疗服务提供的干预措施是一种自我护理行为，即他们积极采取行动来管理自己的健康。
对干预措施的期望与参与带来更好日常生活的希望有关。希望对人们自我护理动机的作用意味着服务提供者应意识到并帮助维持对更好日常生活的希望。在制定针对慢性疼痛的干预措施时，应认识到社会支持作为自我护理一部分的重要性。
ClinicalTrials.gov：NCT02531282。于2015年8月21日注册。
