一项基于同情心的项目对痴呆症患者照料者所经历悲痛的影响：一项随机对照临床试验。
Effects of a compassion-based program on the grief experienced by caregivers of people suffering from dementia: a randomized controlled clinical trial.
作者信息
Jahani Leila, Abolhassani Shahla, Babaee Sima, Omranifard Victoria
机构信息
Science of Medical and Surgical Nursing, Faculty of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran.
Adults Health Nursing Department, Faculty of Nursing and Midwifery, Nursing and Midwifery Care Research Center, Isfahan University of Medical Sciences, No. 81746-73461, Hezar Jerib Road, Isfahan, Iran.
出版信息
BMC Nurs. 2022 Jul 25;21(1):198. doi: 10.1186/s12912-022-00980-5.
BACKGROUND
Dementia is a syndrome that reduces the cognitive and functional abilities of the brain increasing the need for care. The caregivers of these patients are mostly their family members. The great care burden causes devastating effects on the health of family caregivers and the grief experienced by these family caregivers is considerable. This study was conducted to investigate the effects of a compassion-based program on the grief experienced by caregivers of people suffering from dementia.
METHOD
The present study was a randomized controlled clinical trial in which 70 family caregivers of people suffering from dementia were sampled through the block method and they were divided into experimental and control groups. The data collection tools included demographic information questionnaire and grief inventory that was completed before, a week and a month after the implementation of the compassion-based program in five sessions virtually by sending offline content to the experimental group. The obtained data were analyzed by SPSS 22 software using the repeated measures analysis of variance.
RESULTS
The mean comparison of scores of the grief experienced in the experimental group between pretest and posttest and follow-up, unlike the control group, showed a significant difference (p < 0.001). The mean scores of the experimental and the control groups were significantly different in terms of experiencing mourning and all of its fields (p < 0.001). The mean comparison of post-test and follow-up showed that the effect of a compassion-based program at the follow-up stage has been mitigated.
CONCLUSIONS
According to the study results, the compassion-based program reduced the grief experienced by the family caregivers of people suffering from dementia. Nevertheless, the effect of a compassion-based program has been reduced over time. This program can be a good guide for providing society-oriented services to the health team.
TRIAL REGISTRATION
This study is registered by Iranian Registry of Clinical Trials with decree code: IRCT20190712044181N4 on 02/06/2020.
背景
痴呆症是一种会降低大脑认知和功能能力、增加护理需求的综合征。这些患者的护理人员大多是其家庭成员。巨大的护理负担对家庭护理人员的健康造成了毁灭性影响，且这些家庭护理人员所经历的悲痛相当大。本研究旨在调查一项基于同情心的项目对痴呆症患者护理人员所经历悲痛的影响。
方法
本研究为随机对照临床试验，通过整群抽样法选取了70名痴呆症患者的家庭护理人员，并将他们分为实验组和对照组。数据收集工具包括人口统计学信息问卷和悲痛量表，在向实验组以线下内容形式虚拟开展五期基于同情心的项目之前、实施一周后和一个月后完成该量表。使用SPSS 22软件通过重复测量方差分析对获得的数据进行分析。
结果
与对照组不同，实验组在干预前、干预后和随访时所经历悲痛得分的均值比较显示出显著差异（p < 0.001）。实验组和对照组在经历悲痛及其所有方面的平均得分存在显著差异（p < 0.001）。干预后和随访的均值比较表明，基于同情心的项目在随访阶段的效果有所减轻。
结论
根据研究结果，基于同情心的项目减少了痴呆症患者家庭护理人员所经历的悲痛。然而，随着时间推移，基于同情心的项目的效果有所降低。该项目可为卫生团队提供面向社会的服务提供良好指导。
试验注册
本研究已在伊朗临床试验注册中心注册，注册号为：IRCT20190712044181N4 ，注册时间为2020年6月2日。
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