Grice Kimatha Oxford, Barnes Karin J, Vogel Kimberly A
From the University of Texas Health Science Center, San Antonio.
J Burn Care Res. 2015 May-Jun;36(3):414-20. doi: 10.1097/BCR.0000000000000105.
Children with physical disabilities show limitations in the frequency of participation in activities and in the range of activities, such as play and recreation, chores, and social involvement, compared to their able-bodied peers. The Children's Assessment of Participation and Enjoyment (CAPE) is a standardized assessment which evaluates a child's participation in, enjoyment of, and preferences for formal and informal activities other than school activities. In this study, the CAPE was used to evaluate activity participation of children with burns to provide an understanding of the impact of the injury on their participation in activity. The results provided preliminary information that burn injury can affect the activity participation of children. The children in this study were found to participate more in informal domain activities than formal domain, yet enjoyment scores were higher for formal domain activities. It was found that children with burn injury do not participate in social activities as much as children with other physical limitations, but they scored highest in these for enjoyment. In addition, they participate more in activities at home than outside the home. Increased awareness of activity participation of children with burns can guide healthcare professionals toward appropriate interventions and help parents increase participation in desired activities to improve the children's positive adjustment and quality of life. Intervention needs to address all aspects of activity participation, particularly for domain, types of activities, and where they are done. These considerations add another dimension to the care required for children with burn injury.
与身体健全的同龄人相比,身体有残疾的儿童在参与活动的频率和活动范围上存在限制,比如在玩耍、娱乐、家务和社交活动方面。儿童参与和享受情况评估量表(CAPE)是一项标准化评估,用于评估儿童对学校活动以外的正式和非正式活动的参与度、享受程度及偏好。在本研究中,CAPE被用于评估烧伤儿童的活动参与情况,以了解损伤对其活动参与的影响。研究结果提供了初步信息,表明烧伤会影响儿童的活动参与。本研究中的儿童被发现更多地参与非正式领域的活动而非正式领域的活动,然而正式领域活动的享受得分更高。研究发现,烧伤儿童不像其他身体有局限的儿童那样积极参与社交活动,但他们在社交活动中的享受得分最高。此外,他们在家中参与的活动比在户外更多。提高对烧伤儿童活动参与情况的认识,可以引导医疗保健专业人员采取适当的干预措施,并帮助家长增加孩子对期望活动的参与,以促进孩子的积极适应和提高生活质量。干预需要涉及活动参与的各个方面,特别是活动领域、活动类型以及活动地点。这些考量为烧伤儿童的护理工作增添了新的维度。