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与支持 1 型糖尿病的移动应用程序相关的思路和增强功能。

Ideas and enhancements related to mobile applications to support type 1 diabetes.

机构信息

The School of Health & Social Care, Bournemouth University, Bournemouth, United Kingdom.

出版信息

JMIR Mhealth Uhealth. 2013 Jul 25;1(2):e12. doi: 10.2196/mhealth.2567.

Abstract

BACKGROUND

Mobile devices have become increasingly important to young people who now use them to access a wide variety of health-related information. Research and policy related to the integration of health information and support with this technology do not effectively consider the viewpoint of a younger patient. Views of young people with type 1 diabetes are vital in developing quality services and improving their own health-related quality of life (HRQOL), yet research on their lifestyle and use of Web and mobile technology to support their condition and in non-health-related areas is sparse.

OBJECTIVE

To develop insight into young people with type 1 diabetes and their current use of Web and mobile technology and its potential impact on HRQOL. This can be achieved by constructing an in-depth picture of their day-to-day experiences from qualitative interviewing and exploring how they make use of technology in their lives and in relation to their condition and treatment. The goal was then to build something to help them, using the researcher's technical expertise and seeking users' opinions during the design and build, utilizing sociotechnical design principles.

METHODS

Data were collected by semistructured, in-depth qualitative interviews (N=9) of young people with type 1 diabetes aged 18-21. Interviews were transcribed and loaded onto NVivo for theme identification. Data analysis was undertaken during initial interviews (n=4) to locate potential ideas and enhancements for technical development. Latter interviews (n=5) assisted in the iterative sociotechnical design process of the development and provided additional developmental ideas.

RESULTS

Six themes were identified providing an understanding of how participants lived with and experienced their condition and how they used technology. Four technological suggestions for improvement were taken forward for prototyping. One prototype was developed as a clinically approved app. A number of ideas for new mobile apps and enhancements to currently existing apps that did not satisfactorily cater to this age group's requirements for use in terms of design and functionality were suggested by interviewees but were not prototyped.

CONCLUSIONS

This paper outlines the nonprototyped suggestions from interviewees and argues that young people with type 1 diabetes have a key role to play in the design and implementation of new technology to support them and improve HRQOL. It is vital to include and reflect on their suggestions as they have a radically different view of technology than either their parents or practitioners. We need to consider the relationship to technology that young people with type 1 diabetes have, and then reflect on how this might make a difference to them and when it might not be a suitable mechanism to use.

摘要

背景

移动设备对年轻人来说变得越来越重要,他们现在使用这些设备来获取各种与健康相关的信息。与这项技术整合健康信息和支持的研究和政策并没有有效地考虑到年轻患者的观点。了解年轻的 1 型糖尿病患者的观点对于开发高质量的服务和改善他们自身的健康相关生活质量(HRQOL)至关重要,但是关于他们的生活方式以及使用网络和移动技术来支持他们的病情和非健康相关领域的研究却很少。

目的

深入了解 1 型糖尿病的年轻人及其当前对网络和移动技术的使用情况,以及其对 HRQOL 的潜在影响。通过对他们的日常经历进行深入的定性访谈,可以构建一个详细的图片,并探讨他们如何在生活中以及与病情和治疗相关的情况下使用技术。然后,利用研究人员的技术专长并在设计和构建过程中征求用户的意见,根据社会技术设计原则构建一些对他们有帮助的东西。

方法

对 18-21 岁的 1 型糖尿病年轻人进行半结构化、深入的定性访谈(N=9),收集数据。将访谈转录并加载到 NVivo 中,以确定主题。在最初的访谈(n=4)中进行数据分析,以找到技术开发的潜在想法和增强功能。随后的访谈(n=5)协助了开发的迭代社会技术设计过程,并提供了额外的开发想法。

结果

确定了六个主题,了解参与者如何生活和体验他们的病情,以及他们如何使用技术。提出了四项改进技术的建议,用于原型设计。开发了一个作为临床认可的应用程序的原型。受访者提出了一些新的移动应用程序的想法和对当前不符合该年龄组在设计和功能方面使用要求的现有应用程序的增强建议,但未进行原型设计。

结论

本文概述了受访者未进行原型设计的建议,并认为 1 型糖尿病的年轻人在设计和实施新技术以支持他们并提高 HRQOL 方面应发挥关键作用。将他们的建议纳入并进行反思是至关重要的,因为他们对技术的看法与他们的父母或从业者截然不同。我们需要考虑 1 型糖尿病患者与技术的关系,然后反思这对他们有何影响,以及何时可能不是一个合适的机制。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a67c/4114509/2a3d245b3af6/mhealth_v1i2e12_fig1.jpg

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