Khair K
Great Ormond Street Hospital for Children NHS Foundation Trust, Haemophilia Centre, London, UK.
Haemophilia. 2014 Sep;20(5):601-3. doi: 10.1111/hae.12499. Epub 2014 Aug 12.
Adherence or compliance to prescribed treatment regimens is an important and much debated area of haemophilia care. Many patients are labelled as 'non-adherent' because they don't do what we say in terms of self- treatment and factor administration. However, do we engage patients in developing mutually acceptable treatment programmes which work for them as individuals? If we do, does this affect self-care and treatment uptake through a supportive relationship which enhances treatment concordance? Once we have agreed treatment regimens, how do we measure the success or outcomes of them? This paper discusses these issues, and some of the tools that are available to assess adherence in a systematic way.
坚持或依从规定的治疗方案是血友病护理中一个重要且备受争议的领域。许多患者被贴上“不依从”的标签，因为他们在自我治疗和凝血因子给药方面没有按照我们所说的去做。然而，我们是否让患者参与制定对他们个人有效的、双方都能接受的治疗方案呢？如果我们这样做了，这是否会通过增强治疗一致性的支持性医患关系来影响自我护理和治疗的接受度呢？一旦我们商定了治疗方案，我们如何衡量它们的成功或效果呢？本文将讨论这些问题，以及一些可用于系统评估依从性的工具。
