Mikula Pavol, Nagyova Iveta, Krokavcova Martina, Vitkova Marianna, Rosenberger Jaroslav, Szilasiova Jarmila, Gdovinova Zuzana, Groothoff Johan W, van Dijk Jitse P
Institute of Public Health, Department of Social Medicine, Faculty of Medicine, Safarik University, Kosice, Slovakia; Graduate School - Kosice Institute for Society and Health, Safarik University, Kosice, Slovakia.
Institute of Public Health, Department of Social Medicine, Faculty of Medicine, Safarik University, Kosice, Slovakia; Graduate School - Kosice Institute for Society and Health, Safarik University, Kosice, Slovakia.
Disabil Health J. 2015 Jan;8(1):29-34. doi: 10.1016/j.dhjo.2014.07.002. Epub 2014 Jul 16.
Social participation is an integral part of everyday life in society; however, evidence about its association with health-related quality of life (HRQoL) in people with multiple sclerosis (MS) is lacking.
The aim of this study is to explore whether social participation is associated with the Physical Component Summary of HRQoL (PCS) and Mental Component Summary of HRQoL (MCS) in people with MS, controlled for age, gender, disease severity and disease duration.
The sample consisted of 116 consecutive people with MS (response rate: 75.8%; 72.4% women; mean age 40.3 ± 9.8). People with MS completed the Short-Form Health Survey (SF-36) for measuring PCS and MCS and the Participation Scale, which measures the level of social participation. Disability was assessed using the Expanded Disability Status Scale (EDSS). The associations between social participation, PCS and MCS, were analyzed using linear regression that controlled for sociodemographic and clinical variables.
PCS was significantly associated with age, disease duration, EDSS and social participation. MCS did not show significant association with the studied variables. Overall, a multiple regression model explained 48% of the PCS variance, while the proportion of MCS variance explained was not significant.
Social participation was significantly associated with PCS, suggesting a possibility for intervention in this domain.
社会参与是社会日常生活中不可或缺的一部分；然而，关于其与多发性硬化症（MS）患者健康相关生活质量（HRQoL）之间关联的证据尚缺。
本研究旨在探讨在控制年龄、性别、疾病严重程度和病程的情况下，社会参与是否与MS患者的HRQoL身体成分总结（PCS）和HRQoL心理成分总结（MCS）相关。
样本包括116例连续的MS患者（应答率：75.8%；女性占72.4%；平均年龄40.3±9.8岁）。MS患者完成用于测量PCS和MCS的简短健康调查问卷（SF-36）以及测量社会参与水平的参与量表。使用扩展残疾状态量表（EDSS）评估残疾情况。采用线性回归分析社会参与、PCS和MCS之间的关联，并对社会人口统计学和临床变量进行控制。
PCS与年龄、病程、EDSS和社会参与显著相关。MCS与所研究变量未显示出显著关联。总体而言，多元回归模型解释了PCS方差的48%，而解释的MCS方差比例不显著。
社会参与与PCS显著相关，提示在该领域进行干预具有可能性。
