Lal Vivek, Pal Shyamali, Haldar Nishi Kanta, Mandal Pradeep Kumar, Srinivas Govindrajulu
Lepr Rev. 2014 Jun;85(2):81-4.
In order to provide high quality leprosy services to children affected by leprosy, it is necessary to actively engage parents. A qualitative study was undertaken as part of routine monitoring of field activities in West Bengal, India. A non-probability sample of 20 parents whose child was currently undergoing treatment was interviewed to explore the experiences of parents with regard to the diagnosis of leprosy and the treatment of their child. The most common initial symptom was a white patch and the median duration between recognition of the symptom and care-seeking was 6 months. The most commonly reported side-effect was a black discolouration which had led to non-adherence as well as resulting in school absenteeism. None of the parents had any knowledge of reactions. Although current strategies have enabled early case detection, there are challenges related to ensuring treatment completion. Emphasis should be laid on interpersonal communication to empower parents, enabling them to appreciate the side-effects and recognise the complications early and be actively engaged as a treatment partner while their child is on MDT.
为了向受麻风病影响的儿童提供高质量的麻风病服务，积极争取家长的参与至关重要。作为对印度西孟加拉邦实地活动常规监测的一部分，开展了一项定性研究。对20名孩子正在接受治疗的家长进行了非概率抽样访谈，以探究家长在孩子麻风病诊断和治疗方面的经历。最常见的初始症状是白色斑块，从症状出现到寻求治疗的中位时间为6个月。最常报告的副作用是皮肤变黑，这导致了治疗不依从以及孩子缺课。没有一位家长了解有关反应的任何知识。尽管当前策略已实现早期病例检测，但在确保治疗完成方面仍存在挑战。应强调人际沟通，增强家长的能力，使他们能够了解副作用、及早识别并发症，并在孩子接受多药联合治疗时积极作为治疗伙伴参与其中。
